Made a meme today.
Art therapy is one of my favourites.
Made a meme today.
Art therapy is one of my favourites.
Tracking symptoms as I think I’ve noticed a correlation between my cough, night sweats, and exhaustion.
Day before yesterday chest tightness started. Took my puffer yesterday in the morning. Night sweats last night. Woke up wheezy and coughing this morning. Woke up exhausted last two days. Been working a lot more the last 2 weeks.
Must track longer to see what’s what. Maybe a Connective Tissue Disease related? I can’t see this being related to Fibromyalgia or Psoriatic Arthritis.
Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:
All labs are good.
My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.
Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.
The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.
Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.
She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.
Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.
My arthritis symptoms are overall BETTER because I’m working part time.
Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.
So overall my I’m holding up rather well in the physical department.
Chronic pain info dump time!
Those red lines? Those are the paths my pain is following right now. It radiates out as well.
That dot? It feels like I’ve been impaled with a spear at that spot, and the spear is still there.
They tell me this is a fun combination of spinal compression, shitty connective tissue, and the nerve centre in my upper back being all fucked up. The “dot” is where a bunch of scar tissue hangs out from an work accident from years ago.
Meds so far today: Tylenol Arthritis, Naproxen, Cyclobenzaprine, CBD’s.
I have to work a full shift today too. Blarg.
#chronicillness #chronicpain #mylife #snapshot #nervepain #musclepain #jointpain #psoriaticarthritis #arthritis #undifferentiatedconnectivetissuedisease #fibromyalgia #oldwounds #scartissueisabitch #flaring
Mouth ulcers are prevalent. One bout clears up and another starts right after. So occurring about 2-3 times a month right now.
Possible triggers: stress, dehydration, sugar(type of sugar?), cheap chocolate(sugar?), red meat, dairy
After my last appointment with my rheumy I’ve learnt how to identify all three types of pain I have now. Arthritis, Fibromyalgia, Connective Tissue. Lately it’s been the ligaments, connective tissues, skin, and such that are painful. It’s particularly bad today. A 7-8 on the scale. I’ve managed to get myself and the kids dressed and fed, gone to the clinic and pharmacy. Rather proud of myself for that. Still have some grocery shopping to do and getting the boy child his haircut for impending kindergarten.
I’ve taken all the pain meds I can. I’m thinking I might need to take a dose of cyclobenzaprine. This would involve weaning immediately though and I’m undecided if I’m up for that. Fuck it hurts though.
Ugh. That is the word of the day. It’s hot, we are having a heat wave this weekend. Highs in the 30C area, at night it’s about 15-20C. Wreaks havoc with my chronic illness. The kids had a rough week, the older is still having sleeping/eating/meltdown issues as well as teething (he lost his first tooth and the adult tooth replacing it is coming in fast), the younger is teething and growing so eating and waking a lot. My Mom brought me her old mobility scooter now that we’ve moved and have the space to store it, that’s been very helpful. It helped me get out to see her yesterday for her birthday. It’s now been a week since my surgery, healing is slow as I expected it to be (there’s a whole post in the works for that). I’m having issues getting up and down the stairs today. We got a good walk in though to loosen things up. There is a family gathering tonight that I completely forgot about that we aren’t going to. This has upset people greatly. I hate how taking care of myself leads to unhappiness and disappointment in others, let alone myself. I’m enjoying the time with my husband and kids today but I’m really unhappy about people being unhappy with me for taking care of myself. Well they aren’t unhappy with me personally, at least I hope not. Just sad about the situation. Thing is this same person gives me crap for not getting enough rest and self care and whatnot. Just feels like I can’t make anyone happy, least of all myself.
I’m seriously considering medication for depression again. Probably Wellbutrin since it will help with the smoking. I also need something for my Fibromyalgia, and need to discuss my worsening joint pain and such. My rheumatologist moved my May appointment to August. It will be almost a year between appointments. I am not pleased with my current quality of care. I can’t even find a family doctor close to my new home, I don’t think finding a new rheumatologist is going to be any easier. I need a vacation from life or something.