Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

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Update – November 21st 2015

After my hefty morning dose of medicine I curled up on the couch and snuggled with the little man, the Big Man was sitting close by. The bedroom probably would have been better but I’ve barely seen the menfolk after working 12 days straight. After an hour or so I got up and ate something and felt somewhat better, things were down to a dull roar, so about a 10. Took one T3 in the late afternoon, will be taking another plus Naproxen and Cyclobenzaprine to keep on to of things. I know where I slipped up, well outside of agreeing to work that many days consecutively anyways. Timing is everything when it comes to pain, particularly inflammatory pain. It’s like a wildfire. Without containment it will rage through everything. I will be setting up a rotating schedule for my Naproxen so I don’t wait so many days in between courses. Three days on, four to five days off should get me through Winter. A T3 at morning, noon, and night, which I think works out to five hours between doses. Cyclobenzaprine will be taken at bedtime as currently prescribed, as much as possible. I used this drug before I was even pregnant with the little man so I know the instructions for use with Fibromyalgia. If needed I can take one or two more over the day,five or six hours apart. I’d like to avoid that, hence the rotating Naproxen schedule and T3 phone alarm reminders.

Note: I wanted to write more but sleep was more important.

The Rain is Back

There is hot lead in my bones. Nausea and dizziness inducing pain. I may need to up my T3 intake to three a day until I adjust. Have been taking 1000mg of Naproxen, daily for about seven days now. Sudden heart burn is one of the reasons I’m awake. 

August 19th 2015

Long and hot day. Three walks plus second hand store perusing for work supplies with my boss. My hips are the main issue the last few days. Regardless of medication they hurt, that broken glass feeling. Been taking three T3’s per day. Abscessed tooth is responding well to amoxicillin, still can’t chew on that side. The other side is starting to hurt from over use, need to make some soft foods to eat. The heat is still high, along with the humidity, it’s exhausting. BUT…winter is coming. *wink* Some of it is deadfall from the drought but not nearly all of it though.