Interstitial Cystitis Flare – 08/07/2019

Content warnings: blood, intimate details of my nether regions, urine

.

.

.

.

.

.

So.

Things have been epically stressful in my life since June 24th.

I thought I was taking enough care with what I was eating and drinking. After all, it’s been YEARS LITERALLY since my Interstitial Cystitis was any sort of issue. It’s been so long I had to look up relief methods.

The flare isn’t entirely unexpected, but it still caught me a bit off guard. Symptoms include high pain levels (ache/burn) in my nether regions and lower abdomen, bladder spasms, urgency, light bleeding.

I have medicating with CBD/THC, acetaminophen, naproxen, and cyclobenzaprine. Drinking lots of water. Avoiding all trigger foods.

Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

New or Worsening Symptoms – 5/8/2017

  • Dizziness
  • Vertigo
  • Almost fainting
  • Black outs, for a second or two, usually related to almost fainting
  • Memory recall is getting REALLY bad, the “cut off” point, or where my memory starts to get really bad, are memories after my mid to late twenties
  • Nausea
  • Feeling weak/shakey
  • New and worsening psoriasis, the white patching variety not plaques
  • Mild swelling in ankles, wrists, fingers
  • IBS flare
  • Headaches

October 10th 2015

Pain Level: 9-10

Meds: Tylenol Arthritis x 2 doses(4 pills), Naproxen 500mg x 2, Paroxetine x 2

Main symptoms: deep aching pain in muscles and joints, mild brain fog, hot flashes, mild fever, moderate-severe fatigue

Worked six days this week, have tomorrow off for church(as long as I don’t sleep in), then back to it on Monday. I have no Tylenol 3’s left. R gave me mild chiding for not telling him how the clinic doc pretty much said she wouldn’t refill me again. Must call GP on Monday to get a proper refill. There is a pulse to the pain, which is pretty common for me. Tropical storm so-and-so is sending it’s after effects to the West Coast of Canada and Gods can I feel it. Ugh.