Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

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June 29th, 2013

Woke up in a lot of pain this morning, an 8-9. Bad stiffness, pulsing body pain, particularly bad in my hands and wrists. I’m exhausted emotionally and physically. I feel empty, drained. But I am taking great joy in watching my son crawl around the house, learning new things, surprising me with his comprehension. I asked him if he wanted milk, he nodded his head yes. I had suspicions that he was starting to understand what that meant, it’s really neat to actually see it in action though.

The reason I am feeling the way I am today is due largely in part to my day yesterday. My cousin, a cousin who I loved very much, was killed a couple weeks ago while operating heavy machinery at work. He was a young man with small children and a very amazing human being. His funeral was yesterday in Courtenay. Getting there involves a two hour ferry ride and a two hour drive both ways, 8 hours of travel. And then a very moving ceremony. While it has helped me begin my healing process, my acceptance of what has happened, it was exhausting and extremely hard for me.

So today is dedicated to resting.

February 23rd, 2013

I feel like I’ve been hit by a drug and then run over repeatedly. I’ve totally over done it this week. Cranky Ange is Cranky.

 

Today:
300mg Wellbutrin, 150mg Lyrica, 20mg Cipralex, 30mg Cymbalta, 200mg Plaquenil, 1 tylenol w/muscle relaxant, 1 naproxen

October 28th, 2012

I’m going to try to do my updates once a week since doing one everyday isn’t working again.

Weather is the pits so I’m sore and stiff. Hands were pretty swollen this morning. Pain seems to be a bit better and though I was stiff it was better then it usually is on a chilly day. The Plaquenil seems to be starting to work. The upper back is getting bad again. Haven’t had the chance to do more then take Tylenol Arthritis, the little man keeps me really busy. I’m really tired. Started taking Melatonin again so I can sleep. Colon has started to go back to it’s usual unhappiness. Tomorrow I start the transition back on to my “hippie” diet.

Started a FirstCleanse last week. Does seem to be helping with the tiredness, perhaps with the pain as well.

300mg Wellbutrin, 20mg Cipralex, 150mg Lyrica, 1 Plaquenil, 2 Tylenol Arthritis, 1 Tumeric/Bromelain

August 20th, 2012

Sore and stiff now, went to the PNE and walked around for a couple of hours. Had a tasty burger and some wiggle chips, also the traditional Orange Julius and Mini Doughnuts. The PNE was Robs and mines first date, it’s the main reason we go every year, an anniversary of sorts. Got all sunburnt on the tops of my shoulders. I know better then to go out without a shirt to cover with. This is where wearing a hijab would come in very handy. Think I may do that tomorrow when I go see a friend, then the shoulders/neck will be covered. Fin pretty much slept through all of it. I think we got more cranky then he did. Bought a little needle felting kit, can’t wait to give it a try, I want to make little animals! I just need to find some foam or something for a ‘felting mat’, I don’t want to spend $15 on a chunk of foam, I’m sure I can improvise. Left side was really bad again today. My hips, ankles, feet/toes and knees are the worst right now from all the walking. Rob pushed the little guy around most of the day so that helped keep my shoulder under control. Still getting the eyeball popping headaches. Was contemplating more physio or at least a massage. Jaw hurts as well as the T area. Hands seem extra gimpy, mobility is definitely lessened. Wrists were hurting quite a bit today as well.

Sleepy Ange is sleepy. Away with me.

Meds: Wellbutrin 300mg x 1, T1 x 3, Flexeril 5mg x 2, Cipralex 20mg x 1, Lyrica 75mg x 2

Supplements: Folic Acid x 1, Vit D 1,000iu x 3, NutraSea Fish Oil x 2

Pain: 8

August 19th, 2012

The weather changed suddenly overnight which never ever does good things for me. The heat was a little trying but at least the weather patterns were stable for a few days. I find that fluctuating barometric pressure is the worst, regardless of what the actual weather is doing outside. It could be a beautiful and warm sunny day but if the weather is going to change in the next day or two it hurts like Hell. As far as actual weather goes rain is the worst (which is ironic since I live in a temperate rainforest), cold is a close second, then humidity follows. Right now I have a nerve compression headache, or at least that’s what I call it. It’s that big ball of nerves where my neck and shoulders meet, I can’t remember what they are called. I will have to find some pictures. I think the occipital nerves are involved as well as the ones that run down my arms. If I remember correctly the physiotherapist said it was all the nerves in my upper back that were freaking out. It makes my head feel like it’s in a vice, with shooting pains that go up and over my skull and into my eyes. Exciting huh? Then add the tugging/stabbing feeling under my shoulder blades, neck pain mainly in the left side, shooting pain down my arms and tingly fingers and it get’s even more exciting. Now the tingly fingers could be a Fibro thing…but so could all the nerve pain. WHO KNOWS! It’s a fun guessing game! The joints in my hands and wrists are quite painful, also my ankles. I walked about 3.5km in total yesterday, got my exercise and fresh air in, makes me sore though. Let’s see, what else…nausea, general body ache, jaw pain. I’ll update later, off to Church, as much as I like it the pews hurt like Hell…haha…Hell. 😛

Meds: Wellbutrin 300mg x 1, Lyrica 75mg x 1, T1 x 1, Flexeril x 10mg

Pain: 8

Supplements: Vit D 1,000iu x 3, NutraSea Fish Oil x 2, Folic Acid x 1