Ugh. That is the word of the day. It’s hot, we are having a heat wave this weekend. Highs in the 30C area, at night it’s about 15-20C. Wreaks havoc with my chronic illness. The kids had a rough week, the older is still having sleeping/eating/meltdown issues as well as teething (he lost his first tooth and the adult tooth replacing it is coming in fast), the younger is teething and growing so eating and waking a lot. My Mom brought me her old mobility scooter now that we’ve moved and have the space to store it, that’s been very helpful. It helped me get out to see her yesterday for her birthday. It’s now been a week since my surgery, healing is slow as I expected it to be (there’s a whole post in the works for that). I’m having issues getting up and down the stairs today. We got a good walk in though to loosen things up. There is a family gathering tonight that I completely forgot about that we aren’t going to. This has upset people greatly. I hate how taking care of myself leads to unhappiness and disappointment in others, let alone myself. I’m enjoying the time with my husband and kids today but I’m really unhappy about people being unhappy with me for taking care of myself. Well they aren’t unhappy with me personally, at least I hope not. Just sad about the situation. Thing is this same person gives me crap for not getting enough rest and self care and whatnot. Just feels like I can’t make anyone happy, least of all myself.
I’m seriously considering medication for depression again. Probably Wellbutrin since it will help with the smoking. I also need something for my Fibromyalgia, and need to discuss my worsening joint pain and such. My rheumatologist moved my May appointment to August. It will be almost a year between appointments. I am not pleased with my current quality of care. I can’t even find a family doctor close to my new home, I don’t think finding a new rheumatologist is going to be any easier. I need a vacation from life or something.
This is a documentation post. I need to remember to show these photos to the doctor. Or well not the photos but the corresponding spots on my head.
The spots that I thought were mild psoriasis may actually eczema on my scalp. I’m hoping to get a picture of the spot on my ankle and my forehead when they flare up again. The red patches don’t show up well at all but there are discoloured bits in the photo at least. The thinning a bit above each temple is getting worse. It’s starting to remind me of male pattern baldness. I’m shedding a lot of hair right now but I assume that is post pregnancy things.
The first few pictures have a bit of the scaling/flakes.
Things have been busy. The Little Man is walking and getting into everything. It’s also summer which means camping trips and such. I was feeling really good with all this heat. I did my best not to complain because it got REALLY hot REALLY fast. Something has gone funny under the surface though. It’s still warm but things feel broken again. I am seriously thinking about investing in a barometre so I get some warning at least. The burning pain of the infamous “T-Zone” has been mild. Hands/wrists, hips, ankles and feet have been bad. The second joint of my right big toe, the Medial Cuneiform, hurts A LOT and makes walking an interesting adventure…here’s a picture:
My shoulders have been pretty bad this week too. My right one is particularly pissed off, I did something to it picking up the boychild last night. I’ve been experimenting with only taking my afternoon dose of Lyrica if I feel crappy. Not sure of that’s affecting how sore I’ve been lately or not. Either way, it sucks. The Psoriasis on my head is getting pretty bad, I can actually see the red scaly spots now.
My jaw is trying to explode again. Feels like someone is jabbing an icepick into the bottom left spot where the wisdom tooth used to be. Starting to wonder if I should go to the dentist. It’s not just the one spot that hurts, the other side hurts in the same spot as do the joints themselves.
Okay. Moderately productive day. Didn’t get to laze around as much as I wanted but I got some good down time in. Since I took some painkillers at 5am when the Little Man woke us up around 9am I wasn’t feeling too bad in the pain department. Just tired. Hands are doing the dry, cracking, bleeding thing. Doesn’t matter how much or what kind of moisturiser I put on. I’m thinking of putting on some of my steroid cream before bed. Here’s to hoping the little guy goes to sleep soon.
Today: Naproxen x 1, Acetemetophen & Methacarbanol (a muscle relaxer) x 1, Wellbutrin 300mg, Lyrica 150mg, Cipralex 20mg, Cymbalta 30mg
Been really stiff and sore, very low energy levels. Still managed to get out a couple times this week for some exstensive walking.
The psoriasis (or what MAY be psoriasis) is driving me buggy right now. Have had to pull out the topical steroids. My scalp, eyebrows and the areas behind my ears feel like they are on fire. Eyebrows were flaking real good. Scalp about medium. The spots behind the ear are new. I’m trying to remember to take more pictures.
Only a tiny bit of flaking on the scalp in that spot. I can’t get pictures of the other ones right now, they are hiding in my hair.
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