January 6th, 2013

It’s 2013…crazy I tell you. One would thing I would get used to the years changing but apparently not.

I’ve been feeling pretty sore, stabbing pains in the joints, aching. Tingling and numbness in the fingers, guess those compressed nerves in my back are at it again. I do the head tilt exercises a few times a day and it keeps it down to a dull roar. Headaches, some nausea. Energy levels haven’t been too bad. I’m getting cabin fever though. The Little Man was quite sick for the past week, combine that with my own cold/flu and the crappy weather I haven’t been getting out of the house. Going out today to see the family for a wee bit and then Hubby has organized a date afternoon for us tomorrow so that will help. I’ve been sick with this cold/flu for about two months now. Seems to have restarted, like it’s on a loop. Really sore throat, sinus congestion. So far it hasn’t hopped back into my chest. I’ve had to do one round of antibiotics, I’m really hoping to avoid that again. I take some of the codeine based cough syrup for the sore throat. The psoriasis-like symptoms are still around, haven’t had any full on scaling again but the dry flaky eyebrows and red itchy scalp remain. I know, it sounds like dandruff but the special shampoo for that doesn’t work. Sleep has been elusive until I reach a state of exhaustion. I’ve stopped taking the high doses of acetaminophen (Tylenol Arthritis), taking naproxen when I can’t handle the pain any more. I’m concerned for my poor liver.

I’m starting something new with listing my meds, I’m going to list what I should take in a day, at the end of the day of I can and if I need to I will alter what I did or did not take.

 

Lyrica 75mg x 2, Wellbutrin 300mg EL, Cipralex 30mg, Plaquenil 400mg, Naproxen x 1, Voltaren Emulgel x 1

August 20th, 2012

Sore and stiff now, went to the PNE and walked around for a couple of hours. Had a tasty burger and some wiggle chips, also the traditional Orange Julius and Mini Doughnuts. The PNE was Robs and mines first date, it’s the main reason we go every year, an anniversary of sorts. Got all sunburnt on the tops of my shoulders. I know better then to go out without a shirt to cover with. This is where wearing a hijab would come in very handy. Think I may do that tomorrow when I go see a friend, then the shoulders/neck will be covered. Fin pretty much slept through all of it. I think we got more cranky then he did. Bought a little needle felting kit, can’t wait to give it a try, I want to make little animals! I just need to find some foam or something for a ‘felting mat’, I don’t want to spend $15 on a chunk of foam, I’m sure I can improvise. Left side was really bad again today. My hips, ankles, feet/toes and knees are the worst right now from all the walking. Rob pushed the little guy around most of the day so that helped keep my shoulder under control. Still getting the eyeball popping headaches. Was contemplating more physio or at least a massage. Jaw hurts as well as the T area. Hands seem extra gimpy, mobility is definitely lessened. Wrists were hurting quite a bit today as well.

Sleepy Ange is sleepy. Away with me.

Meds: Wellbutrin 300mg x 1, T1 x 3, Flexeril 5mg x 2, Cipralex 20mg x 1, Lyrica 75mg x 2

Supplements: Folic Acid x 1, Vit D 1,000iu x 3, NutraSea Fish Oil x 2

Pain: 8

February 3rd, 2012

Woke up at 3am. I tried to not get out of bed for as long as possible but my bladder was about to explode. I swear the Bun jumps on it around 3am every day. Once I was awake I couldn’t get back to sleep. Throbbing was starting in the t-zone again. My arms from the fingertips up to the shoulder blades are tired and achy and sore. They have their own pulse now. This has become a normal daily thing. It’s making me cranky. Mr. Cat is lucky I haven’t strangled him yet this morning. I am also famished and I want a cup of my cheap ass mocha (instant coffee, hot chocolate mix, milk, voila!). The kitchen is all the way over there though and I’m tired and sore and don’t want to move. Going to the bathroom and taking meds was annoying enough. I’ll let the heating pad work some of it’s magic for a bit longer and then get up. Of course I feel like this on a day where I have things to do. I am going to the pool with my SIL, Mom, a good friend with her baby, and the niece and nephew. I’m not really a swimmer…more of a wader…like a hippo. And you won’t catch me dead in a bathing suit anymore…shorts and a t-shirt work just fine. After that the plan is to go to TJ Kiddies which is this baby/kid store that has the most awesome things. The unfortunate thing is that most of it is way out of my price range. Still fun to go look though. I’m undecided as to whether or not the exercises from the physio are helping or not. The small neck stretches do help a bit but the strengthening exercises for my shoulder blade area I’m beginning to think are actually making things worse. I managed to get them done as instructed, one set of ten for both exercises, twice a day, for a few days earlier in the week. After those few days I felt like I had been hit by a truck. So I stopped altogether for a day. Only did them once a day the next two days. I’ll try twice today and see what happens.

As far as the Bun goes, she seems like a happy little camper. Wiggling around in there a whole bunch. On days like yesterday where I was up and walking around (light housework, feeding myself and the hubby) I don’t feel nearly as much movement, which always makes me paranoid. When I spend the majority of the day laying down it’s like she’s having a party in there. She was 13 oz. at the 20 week ultrasound, which is apparently 3 oz. heavier then the average at that stage. I wonder how much they grow in two weeks? The stretch marks are starting, different colours even! There’s little red ones and silver ones! Hehe! I suppose it’s just a testament to my personality that I am thoroughly entertained by this. I’m becoming a milk factory already. Luckily this only happens in the shower, no leaking in public as of yet.

I’m going to have a snack. I think the heating pad is going to put me back to sleep again, one of the things I love about it. Will do my best to remember to update later.

Pain Management: 2 XS Tylenol, neck stretches x 1, shoulder/upper back exercises x 1, heating pad, 1 Wellbutrin

Supplements: 1 folic acid, 1 vit D

Pain: 8

Mood: 6

January 11th, 2012

Missed a day! I was really busy yesterday, did lots of running around. Wasn’t too terribly sore. At least not as sore as I had been the last two days. I was out ALL day so I was really tired.

Today was painful. First physio appointment. Because I am pregnant I can’t do any of the electric based treatments. I am limited to posture correction, exercises and manual treatments. Had the usual poking and prodding. She didn’t say what had caused it, this pain in my upper back and shoulders but explained what was going on. The nerves in my neck and spine are being compressed, my arthritis may be contributing to this, building deposits up around nerves. The entire nerve system of my neck, which actually starts just under the shoulder blades and up is involved. I didn’t even know it did that. It’s a pretty text book case of long term nerve compression as far as she can tell. The only oddities being that I get no relief from raising my arms, which should lessen the pressure on those nerves, my left arm is weaker then my right and when I sit up straight my right shoulder is higher than the left but when I stand up straight it evens out. Even my uneducated brain thinks that’s weird. There is a pronounced and unnatural curve to my neck which is causing most of the compression. So what we need to do is first centralize the pain from my entire upper body to the just the junction between shoulders and neck. Once that is done we work on getting at the source of the compression which is that spot.

It is going to get worse before it gets better though.  The way nerve pain works is like this PAIN-BURNING-TINGLING-NUMBNESS(Or something like that, I can’t quite remember). My pain sits in the burning/tingling/numbness area. This means we have  to work our way back though the scale. Think about when your leg falls asleep. The progression of symptoms from being asleep to normal. That’s basically what I get to do. And because it’s hurt for so long it is going to take a long time to get it back to any sense of normal. All we did today was light manual traction on my neck. It hurt…a lot. And it felt weird getting full sensation back into my left hand when I had not even realized it was gone in the first place. She was impressed by how quickly it seemed to return, but I told her just wait it probably won’t last for long. Which she figured would happen too.

I had to buy a new pillow, extra firm, and fold a towel and place it inside the pillow case at the bottom to support my neck. Whenever I sit I need to have a rolled up towel supporting the curve in my lower back. I have to be conscious of how my body is positioned. Think yoga, I need to make sure my spine is straight and in it’s natural position, stacking the skull and neck above the shoulders, rather then the lean it has over the shoulders right now. Every two hours I have to sit with proper posture and gently nod my head forward. This also hurts, but it does bring some relief for a bit. It always builds back up over the two hours, but at least I have a way to dial it back ever so slightly. I also need to use the heating bag regularly, this will not only ease the pain but bring blood to the area and help it to heal. I go back next week.

Had my name changed on my SIN card yesterday…only four years after I was married, hehe. Spent TWO HOURS today setting up my sickness, maternity and parental benefits. I need to stop by a Service Canada office this week to drop off my note and one of my records of employment.

In the last week or two I have been getting pain in my midback on my left side, it curls around the front along my ribs right to my sternum. Antacids don’t touch it. Tylenol helps a bit. I mentioned it to the physiotherapist saying I figured it was a pregnancy thing. She said it might be but it is more than likely something to do with the RA. I wish I could just get into the new Rheumatologist!

That’s all I can remember right now. My spine is on fire and I want snuggles.

Pain Management/Meds: 2 wellbutrin, 15mg cipralex, 2 ES Tylenol, heating bag, exercises, back support

Supplements: 2 Omega3, 1 Vit D, 1 Prenatal Vitamin, 1 folic acid

Pain: 9-10

Mood: 7