Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

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1 February 2016

Fibro Pain: 8-9
Arthritis Pain: 5-6

Joints were only mildly cranky, mostly due to work. Fibro pain was bad today. A few light headed moments. Had a late walk and missed my bus, watched it drive by as I was painfully trying to book it up the stairs. I just about burst into tears. When I got up the last flight my wonderful hubby and the child were waiting for me to drive me home. SO happy to see them. My mid-spine is quite painful today. I’ve never been sure if that pain is FM or PA related. I discovered this evening that I have lost the ability to use a mortar and pestle. I know I can pick up an electric grinder for like $10 but it’s not about the ease of which I can replace using my hands; It’s about the fact it’s one more thing I’ve lost the ability to do with my hands. I am displeased but too tired and worn out to really get bent out of shape about it. I’m VERY slowly putting together a batch of banana-carrot-zucchini muffins, and by slowly I mean I started an hour ago. *silly face* They will be good when they are finally done. Hanging out with my son is great. I don’t get to see him nearly enough right now. Last week I did routine blood tests ordered by my rheumatologist. I think they are just to make sure all my organs are happy since I am generally on medication at all times. I’m supposed to get them done every six months but I haven’t gotten them done in about a year. My GP’s office called today to come in and talk about it, so I go do that tomorrow. I don’t think there is actually anything to worry about. My rheumatologist put me back on Plaquenil after I stopped it on the advice of my GP about 9 months ago. Said in my case it is more stressful on my body and worse for conception/pregnancy to be off than on. There have been rare cases of children born with some hearing loss. I’m back on it though and very happy about it. A few more weeks and I’ll start to feel some real difference in pain levels. New studies have also pointed to anti-inflammatories causing issues with egg implantation, rheumatoloist said it’s not anything to worry about with folks who get pregnant easily but since I do have issues with that we have taken off of any anti-inflammatory drugs.

I think that’s all the new info.

Butterfly Rash?

This rash isn’t new but it is the worst I’ve seen it. Was working in the sun the last few days so I’m wondering if it’s the UV sensitivity from the Hydroxychloroquine(Plaquenil) or if it’s butterfly rash. I have Undiferentiated Connective Tissue Disease, which if put very simply is Lupus before there are enough recognizable symptoms to officially call it Lupus. Such is the curse of crossover symptoms! You can see how pleased I am about this. The annoying thing is that it was sunny for a couple days, then overcast and today is rain; You’d figure if it was the photosensitivity that the sunny days would have been worse.