August 20th, 2012

Sore and stiff now, went to the PNE and walked around for a couple of hours. Had a tasty burger and some wiggle chips, also the traditional Orange Julius and Mini Doughnuts. The PNE was Robs and mines first date, it’s the main reason we go every year, an anniversary of sorts. Got all sunburnt on the tops of my shoulders. I know better then to go out without a shirt to cover with. This is where wearing a hijab would come in very handy. Think I may do that tomorrow when I go see a friend, then the shoulders/neck will be covered. Fin pretty much slept through all of it. I think we got more cranky then he did. Bought a little needle felting kit, can’t wait to give it a try, I want to make little animals! I just need to find some foam or something for a ‘felting mat’, I don’t want to spend $15 on a chunk of foam, I’m sure I can improvise. Left side was really bad again today. My hips, ankles, feet/toes and knees are the worst right now from all the walking. Rob pushed the little guy around most of the day so that helped keep my shoulder under control. Still getting the eyeball popping headaches. Was contemplating more physio or at least a massage. Jaw hurts as well as the T area. Hands seem extra gimpy, mobility is definitely lessened. Wrists were hurting quite a bit today as well.

Sleepy Ange is sleepy. Away with me.

Meds: Wellbutrin 300mg x 1, T1 x 3, Flexeril 5mg x 2, Cipralex 20mg x 1, Lyrica 75mg x 2

Supplements: Folic Acid x 1, Vit D 1,000iu x 3, NutraSea Fish Oil x 2

Pain: 8

March 2nd, 2012

Been really sore the last few days. The cold and wet weather isn’t making things enjoyable. Hands are red and swollen when I wake up. The “T-Zone” pain is returning to it’s usual levels. Physio told me to come back if it got bad again. I suppose I should give them a call. It just seems wasteful to spend $50 for 20min or so of light traction on my neck. Wrists are tender and sore, pain up to the middle of my forearms. Ankles are sore. A few days ago after sitting on the couch for a bit I got up and it felt like I had sprained my right ankle. Been coming and going ever since. Hips get sore unless I sit with my legs up so this recliner in my couch is coming in handy. Third trimester sleepys are kicking in. Baby kicks up a storm a good portion of the time. My belly jiggles now when it kicks. The hubby finally felt it the other day. He was super happy. Crochet work on the little teddy bear I am making for my niece is being put off until warmer weather returns, fingers can’t handle all the  small stitches. So I’ve started a blanket for baby with this pretty white and grey yarn. It’s a zig-zag stitch, which is new for me but it’s fun.

Update
Was mildly productive. Checked my EI status, ROE still not there. Took to maintenance fee to the office. Finally found the mail key after looking for half the day so I got into the mail. My yarn order is not here yet. Spent most of the day being a vegetable. Head has been pounding all day along with the T-zone. Time for bed.

Meds/Pain Management: 2 Wellbutrin, 2 ES Tylenol, 15mg Cipralex, neck stretches

Supplements: 1 Vit D, 1 Folic Acid, 1 Prenatal Vit

Pain: 8

Mood: 7

February 3rd, 2012

Woke up at 3am. I tried to not get out of bed for as long as possible but my bladder was about to explode. I swear the Bun jumps on it around 3am every day. Once I was awake I couldn’t get back to sleep. Throbbing was starting in the t-zone again. My arms from the fingertips up to the shoulder blades are tired and achy and sore. They have their own pulse now. This has become a normal daily thing. It’s making me cranky. Mr. Cat is lucky I haven’t strangled him yet this morning. I am also famished and I want a cup of my cheap ass mocha (instant coffee, hot chocolate mix, milk, voila!). The kitchen is all the way over there though and I’m tired and sore and don’t want to move. Going to the bathroom and taking meds was annoying enough. I’ll let the heating pad work some of it’s magic for a bit longer and then get up. Of course I feel like this on a day where I have things to do. I am going to the pool with my SIL, Mom, a good friend with her baby, and the niece and nephew. I’m not really a swimmer…more of a wader…like a hippo. And you won’t catch me dead in a bathing suit anymore…shorts and a t-shirt work just fine. After that the plan is to go to TJ Kiddies which is this baby/kid store that has the most awesome things. The unfortunate thing is that most of it is way out of my price range. Still fun to go look though. I’m undecided as to whether or not the exercises from the physio are helping or not. The small neck stretches do help a bit but the strengthening exercises for my shoulder blade area I’m beginning to think are actually making things worse. I managed to get them done as instructed, one set of ten for both exercises, twice a day, for a few days earlier in the week. After those few days I felt like I had been hit by a truck. So I stopped altogether for a day. Only did them once a day the next two days. I’ll try twice today and see what happens.

As far as the Bun goes, she seems like a happy little camper. Wiggling around in there a whole bunch. On days like yesterday where I was up and walking around (light housework, feeding myself and the hubby) I don’t feel nearly as much movement, which always makes me paranoid. When I spend the majority of the day laying down it’s like she’s having a party in there. She was 13 oz. at the 20 week ultrasound, which is apparently 3 oz. heavier then the average at that stage. I wonder how much they grow in two weeks? The stretch marks are starting, different colours even! There’s little red ones and silver ones! Hehe! I suppose it’s just a testament to my personality that I am thoroughly entertained by this. I’m becoming a milk factory already. Luckily this only happens in the shower, no leaking in public as of yet.

I’m going to have a snack. I think the heating pad is going to put me back to sleep again, one of the things I love about it. Will do my best to remember to update later.

Pain Management: 2 XS Tylenol, neck stretches x 1, shoulder/upper back exercises x 1, heating pad, 1 Wellbutrin

Supplements: 1 folic acid, 1 vit D

Pain: 8

Mood: 6

January 31st, 2012

Well, that was a lengthy delay in posting. Wasn’t so much that I was feeling rotten…although I was…it has more to do with energy levels. I’ve been eating better, more fruits and veggies, and drinking more water, sleeping more, not helping much though. The bipolar weather has been wreaking havoc. Let’s see if I can remember all the details.

Pysio:
First two appointments were helpful. The traction seemed to loosen my neck up, balanced the strength in my arms. The day of would hurt but the next 4 or 5 days would be great comparatively. Still sore but none of that burning nasty pain that makes me want to rip out my spine. Not so much this time. Had an appointment last Wednesday which as usual had me sore the day of but I was chipper. Was told not to come back for three weeks since things seemed to be rolling along as well as could be expected. The next day I felt like I was hit by a truck. Limited burning pain which I am thankful for but the pain levels were pretty high. Headaches, pain in my shoulders and shoulder blades, hands very sore. So I don’t know what the hell is going on.

New Baby Doctor:
I was pleasantly surprised by the OB clinic. While I was not pleased by the fact we were there for 2 hours, almost 45 minutes late getting into the appointment. Was understandable when we found out the doctor was across the street at the hospital delivering a baby! They were very thorough, much more so then the midwives. Rob is very pleased. He doesn’t have issues with midwives, he liked the ones we saw for the last pregnancy, he just wasn’t too pleased about these ones. First we saw the nurse, peed in a cup, had my weight taken (155lbs), and blood pressure. All good. My blood pressure is perfect apparently and has been all the way through. Had extensive  conversation about previous pregnancy, medications I was taking and am now taking, depression and anxiety and so on. Once we got in to see the doctor he asked extensive questions about my conditions. Made sure I was getting proper care for my depression and anxiety, if the midwives hadn’t already referred me to a head doctor he would have. Sending me to an allergist (Feb. 10th) to recheck my latex sensitivity. Requested my records from the Rheumatologist so he can go over them. I explained how the docs sort of waffle as to what it is I have, the FM, the RA or both. Explained how my first RF test was a “high normal” which he said could have been a false positive, but then I told him how at one point my RF was at 14, which is a definite positive, he said, “Well you’re just an odd one then aren’t you?”, which made me giggle. I love doctors with a sense of humour. He has had one patient with RA and they kept things under control for her with small doses of prednisone. We need to be careful about my flare, we can’t let the joint pain and inflammation get too bad. So while I am concerned I will have another doctor tell me I am crazy, I am hopeful he won’t. He seems really down to earth and seems to like to get to the bottom of things. He asked when I had seem my Rheumatologist last and I  told him almost a year ago which got a slightly confused look from him, then I told him how he had told me not to come back, which he wasn’t impressed with. So that also gives me hope. While I don’t WANT to have RA or FM, I was hoping that during pregnancy that it would be extensively looked into, which is what seems to be happening. So I’m crossing my fingers. I’ve also decided to take Rob to all medical appointments with me from now on if possible. Not only did he back me up on how I’ve been feeling, he could ask questions that he had. Speaking of which, he’s been hounding me about how much I am eating and what I am eating and that I’m not gaining enough weight. So we asked the doctor, he said 7 pounds at this point is fine and that he doesn’t want me eating LOTS of food because we don’t want a giant baby, I just have to make sure what I am eating is well balanced and nutrient rich.

Today:
Today I woke up at 5am, which was nice. Had my usual wake up at 3am, but managed to get back to sleep pretty quick. Was feeling half decent until about half an hour ago. I woke up with a very painful jaw and sore teeth on the left side which is an indicator of how much I am grinding my teeth and clenching my jaw in my sleep. Which is unfortunately an indicator of stress. My neck is sore and stiff. Well maybe stiff isn’t the word, it just hurts to turn from side to side.  Shoulders and shoulder blades are very painful, feels like rocks are under my shoulder blades again. Arms, wrists and hands are exhausted from the small amount of typing I have been doing and my wrists and joints in my hands and fingers are beginning to hurt a lot. After two ES Tylenol my jaw feels a lot better but my headache isn’t any better. Having the pain above my eyeballs which is apparently something to do with the nerve compression. The more frequent popping and grinding in my neck is concerning me quite a bit. The OB said if my “nerve compression” isn’t getting any better he will send me for an MRI. I’m thinking I will ask him about that in three weeks when I go back. I think it’s time for a bit of  a nap or some vegetating at least. Will update later.

UPDATE:
After my nap I did actually have a productive day. Did some light housework. Had a visit with a good friend and her little munchkin. She brought me food too which was beyond awesome. Beef burrito from Taco Del Mar. It’s huge. I only ate half, the rest will be lunch tomorrow. It really is bizarre the things I can eat right now. So many things I haven’t enjoyed in so long. I’m taking full advantage. Then I puttered around online. Baked carrot orange walnut muffins which are incredible. Also made banana bread, also very tasty. Tried to crochet, after ripping the whole thing out three times I gave up on that for the evening. Headache never really went away, the jaw pain was off and on. As was the shoulder and back pain. Found myself getting really tired really fast. I took lots of little breaks. When I had my nap earlier today the spot under my left breast on the rib cage actually woke me up twice. Felt like it was on fire. So I slathered it in A535 and the last of my lidocaine cream and that worked quite nicely. I’m really tired and worn out but pleased. It was a good day.

 

Pain Management/Meds: 4 ES Tylenol, turned down the lights and volume on tv, heating pad, 2 Wellbutrin, 15mg Cipralex

Supplements: 1 folic acid, 1 vit d, 1 prenatal vit

Pain: 8-9

Mood: 7-8

January 17th, 2012

I can’t seem to find a comfortable spot today. It’s making me cranky. Fell asleep around 9:30pm, did the usual tossing and turning but slept somewhat. The dropping temperatures are making things rather difficult. Woke up at 2:45am and haven’t managed to get back to sleep. I lay in bed for a few hours and eventually got up about an hour and a half ago. I’m pretty much done as far as the computer goes already. Even with my fancy gloves typing hurts and causes an overwhelming sense of fatigue in my hands/arms only after a few words. I had all this stuff I wanted to type today but it will have to wait. The ES Tylenol isn’t doing much, heat only helps for a short time, the lidocaine I put on my neck is making things somewhat bearable. I moved wrong last night during one of my tossing and turning moments. My neck made this lovely crunching sound, luckily I am going to physio tomorrow. The physio lady told me things are going to get considerably worse before they get better, so I wonder if my neck and upper back are so bad because of this and not just the weather. I know the rest of the pain is caused by the weather. I’m going to try to catch a nap before my Mum comes over to help me organize and clean.

Update:

I caught a nap, slept for a couple hours before Mum got here. We went a little crazy with the cleaning, her doing the majority of the  work, I just pointed at things. I don’t know how to repay her. I know she does it because she loves me, but I still feel bad about it sometimes. I now have an official laundry room, clearing out some appliances from the kitchen to make more space. It’s pretty fantastic. Most of the Christmas decorations are put away, just have to take down the tree. Hung this fancy shelf type thing in the closet of the baby’s room and got some stuff onto that. Things are coming along nicely. On the baby front my belly is huge. My husband put his hand on it, I moved it down lower to where the baby actually is (he had his hand on my organs*giggles*) and he said “Oh! It’s getting hard!”. This of course makes me think about things that got us the baby, not the baby itself, which is just the way my sense of humour works. Well I didn’t actually think that until I was typing it. When he had his hand on my belly I was all happy and warm and fuzzy. He’s been a little scared to touch it I think. He’s getting more relaxed. I’ve been working on the cloth diapering thing, trying to figure out the cheapest and most effective way of doing it. When Mum and I were in the London Drugs today we found latex, dye, and perfume free diapers, using corn based products as a base. Not sure if they are biodegradable but they are close enough and cover all the bases I was concerned about (except for the biodegradable part which I will look into). The two brands were Earths Best and Nature Babycare. Both were very reasonably priced. Still not as cheap as the regular disposables but still really well prices. Earths Best was $16.99 for 50 newborn diapers, Nature Babycare was $14.99 for 42. The longer I go without meds and get used to my new normal I’ve been realizing that the cloth diapers will be murder on my hands. So as much as I hate to do it I will have to switch to these eco-friendly disposables. There are Nature Babycare wipes too that are the same price. I will be doing cloth wipes at home but I still want some disposables for when I go out.

I felt like I had been hit by a truck all day to varying degrees. So by noon I was done. Slept until 5pm. Got up, made dinner. Rice pudding is in the oven. Once it is out I will be going to bed again. I have physio early in the morning, of course it is the coldest day of the year so far. Needless to say I am taking a cab. Here’s to hoping I can sleep tonight.

Pain Management/Meds: 2 ES Tylenol, 1 Lidocaine, Heating Pad, Arthritis Gloves, 2 Wellbutrin, 15mg Cipralex, sleep

Supplements: 1 Vit D, 1 Folic Acid, 1 Prenatal Vit

Pain: 10

Mood: 6

January 11th, 2012

Missed a day! I was really busy yesterday, did lots of running around. Wasn’t too terribly sore. At least not as sore as I had been the last two days. I was out ALL day so I was really tired.

Today was painful. First physio appointment. Because I am pregnant I can’t do any of the electric based treatments. I am limited to posture correction, exercises and manual treatments. Had the usual poking and prodding. She didn’t say what had caused it, this pain in my upper back and shoulders but explained what was going on. The nerves in my neck and spine are being compressed, my arthritis may be contributing to this, building deposits up around nerves. The entire nerve system of my neck, which actually starts just under the shoulder blades and up is involved. I didn’t even know it did that. It’s a pretty text book case of long term nerve compression as far as she can tell. The only oddities being that I get no relief from raising my arms, which should lessen the pressure on those nerves, my left arm is weaker then my right and when I sit up straight my right shoulder is higher than the left but when I stand up straight it evens out. Even my uneducated brain thinks that’s weird. There is a pronounced and unnatural curve to my neck which is causing most of the compression. So what we need to do is first centralize the pain from my entire upper body to the just the junction between shoulders and neck. Once that is done we work on getting at the source of the compression which is that spot.

It is going to get worse before it gets better though.  The way nerve pain works is like this PAIN-BURNING-TINGLING-NUMBNESS(Or something like that, I can’t quite remember). My pain sits in the burning/tingling/numbness area. This means we have  to work our way back though the scale. Think about when your leg falls asleep. The progression of symptoms from being asleep to normal. That’s basically what I get to do. And because it’s hurt for so long it is going to take a long time to get it back to any sense of normal. All we did today was light manual traction on my neck. It hurt…a lot. And it felt weird getting full sensation back into my left hand when I had not even realized it was gone in the first place. She was impressed by how quickly it seemed to return, but I told her just wait it probably won’t last for long. Which she figured would happen too.

I had to buy a new pillow, extra firm, and fold a towel and place it inside the pillow case at the bottom to support my neck. Whenever I sit I need to have a rolled up towel supporting the curve in my lower back. I have to be conscious of how my body is positioned. Think yoga, I need to make sure my spine is straight and in it’s natural position, stacking the skull and neck above the shoulders, rather then the lean it has over the shoulders right now. Every two hours I have to sit with proper posture and gently nod my head forward. This also hurts, but it does bring some relief for a bit. It always builds back up over the two hours, but at least I have a way to dial it back ever so slightly. I also need to use the heating bag regularly, this will not only ease the pain but bring blood to the area and help it to heal. I go back next week.

Had my name changed on my SIN card yesterday…only four years after I was married, hehe. Spent TWO HOURS today setting up my sickness, maternity and parental benefits. I need to stop by a Service Canada office this week to drop off my note and one of my records of employment.

In the last week or two I have been getting pain in my midback on my left side, it curls around the front along my ribs right to my sternum. Antacids don’t touch it. Tylenol helps a bit. I mentioned it to the physiotherapist saying I figured it was a pregnancy thing. She said it might be but it is more than likely something to do with the RA. I wish I could just get into the new Rheumatologist!

That’s all I can remember right now. My spine is on fire and I want snuggles.

Pain Management/Meds: 2 wellbutrin, 15mg cipralex, 2 ES Tylenol, heating bag, exercises, back support

Supplements: 2 Omega3, 1 Vit D, 1 Prenatal Vitamin, 1 folic acid

Pain: 9-10

Mood: 7