Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

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March 6, 2016

Arthritis Pain: 5
Fibromyalgia Pain: 7-8

 

My body is angry. My brain is very tired. I have come down with the virus/plague/whatever is going around here. My spouse with his iron clad immune system is still fighting it after four weeks. I’m going to be sick until freaking Summer. I just want to sleep but I have to go to work. I was considering a new line of work but both my Rheumatologist and Psychiatrist both recommend me staying in this current job. It supplies “free” exercise and animal therapy as well as keeping me active. I may need to take a day off later this week. Arthritis isn’t too bad these days, my FM is kicking my ass though. VERY achy and stiff, a lot of brain fog. Anxiety is definitely better than it was.

Update – November 21st 2015

After my hefty morning dose of medicine I curled up on the couch and snuggled with the little man, the Big Man was sitting close by. The bedroom probably would have been better but I’ve barely seen the menfolk after working 12 days straight. After an hour or so I got up and ate something and felt somewhat better, things were down to a dull roar, so about a 10. Took one T3 in the late afternoon, will be taking another plus Naproxen and Cyclobenzaprine to keep on to of things. I know where I slipped up, well outside of agreeing to work that many days consecutively anyways. Timing is everything when it comes to pain, particularly inflammatory pain. It’s like a wildfire. Without containment it will rage through everything. I will be setting up a rotating schedule for my Naproxen so I don’t wait so many days in between courses. Three days on, four to five days off should get me through Winter. A T3 at morning, noon, and night, which I think works out to five hours between doses. Cyclobenzaprine will be taken at bedtime as currently prescribed, as much as possible. I used this drug before I was even pregnant with the little man so I know the instructions for use with Fibromyalgia. If needed I can take one or two more over the day,five or six hours apart. I’d like to avoid that, hence the rotating Naproxen schedule and T3 phone alarm reminders.

Note: I wanted to write more but sleep was more important.

Uncertainties

Once again it is time for a round of “What the fuck do I do?”.

I really do love my job. The time with the dogs is awesome and therapeutic, the walking is good to a certain degree but I WAY overdo it pretty much every day. I worry about joint damage now that I’ve been off my arthritis medication for so long. I can dope myself up to high heaven to get through the day if I need too get through the pain but it doesn’t stop damage. Living in a country with public medical care is fantastic, I’m frustrated though that because I missed my last appointment with my Rheumatologist in August that I have to wait until February to see her again. There’s questions I’d like to ask about pregnancy, let alone how to keep my joints safe while I am off my medication.

Remember the allergic reaction I had the other day? Well I had another reaction the next day while at work. Those two days I was working at the doggie daycare side of the business not just walking. I have a mild dog allergy that I really had never noticed before, I have been around or had dogs in the house my whole life. Apparently when you stuff a bunch of them in a building though and then have me sweep up the hair, THEN it becomes a problem, which makes sense. The hair and dander would probably make anyone react. It’s not even that it’s filthy or anything, it’s VERY clean but enclose everything and yeah. Issues. Good thing is now that I am not taking Lyrica or Plaquenil I can tale allergy medication without going into a drug induced coma. Not sure how that will work when I get pregnant.

I could very easily get a retail type job and make more money with considerably less work. I would lose A LOT of things though. With my current job I can stop and go as I need too. If I am feeling extra gross I can stay in the backyard with the dog or take it to the nearest dog park and they can run about. When the weather is the shits I only have to take them out to pee/poop and then we go inside to play. I can take my son with me to pretty much any walk if I need too. When I worked four hours at the daycare on the weekend he got to come with me and spend the whole time with me and play with the pups. This is not even touching on the fact it is a tiny local business that I work for.

*sigh*

Okay I feel a little better after dumping all this on the page. Thanks for listening folks.

November 14th 2015

Woke up feeling relatively well, for me this means pain levels starting around 6. Took my morning medication in a timely fashion since I had a walk to do today with the child in tow. I skipped my afternoon dose of Tylenol 3 since I didn’t do a lot of walking, not taking into consideration the housework I got up to. Oh and the child alone for 80% of the day. He’s such a part of my life that I forget to put spoons aside. He was well behaved with minimal threenager outbursts at least. By the time I took my second dose it was close to 6pm. FAR too long to wait. While my hips weren’t on fire the rest of my body is achy and sore and exhausted. Why do I keep trying to keep my T3 usage down to two you ask? I am an addict in recovery and I am terrified of opiates. It has been five years since my last major indiscretion. I was clean for three years before I let myself relax and start having a drink under very particular circumstances. I’ve read of people in recovery getting tripped up by pain killers SO OFTEN. So yeah, it makes me nervous. Pain levels spiked at a 9, sitting around a 7.5-8 currently. Once I get the little man to bed I can crawl into bed. I have to work tomorrow, it’s usually my only guaranteed day off but my boss has been working for about two months without a break so I figure I can go hang out with the dogs at the daycare for a half shift so she can stay home with her hubby and little one.

**Allergic Reaction Note**
About an hour ago I became REALLY itchy and broke out with a few hives. The only things different about today was making flat bread with some masa flour for lunch and goulash with some Meat Magic from Watkins added. I’ve had masa flour before but not for about six months and since I ate them around noon I don’t think hives would wait 6 hours. I’m guessing something in the seasoning ticked something off. The itching is generally around joints so it could also be due to an impending flare.

   
 

October 11th 2015

Pain: currently 10/11, fluctuating between 8-11 most of the day

Meds: Naproxen 500mg x 2, Tylenol Arthritis x 6, Cyclobenzaprine x 1, Paroxetine x 2

Main issues: literally everything 
My pain has pretty been at “barf” all day. Tropical Storm so-and-so is almost done though so there’s that to look forward to. Pulsing, nauseating pain everywhere, particularly bad in the shoulders and upper back and neck(the dreaded ‘t zone’). Also nauseated from angry belly, too much Naproxen. I’m going to have to stop for at least a few days to let things settle. 

It feels like an alien is trying to escape from my lower abdomen. I broke two of my cardinal rules this past week and am paying for it now. There are some foods I can eat that will only stress my gut if I over eat them. Then there are the foods that, regardless of amount or how often I eat it, will give me excruciating (child birth level) gut cramps; Puff pastry and pie crust. I adore it. I’ve been gorging on pecan pie and use patty pan shells for chicken ‘pot pie’ the other night. So good, but it feels like razor blades once it hits my intestines/colon.

The home made pumpkin pie on my counter from my mother-in-law must be eaten slowly. Or I may wind up at the hospital.

Umm. Happy Canadian Thanksgiving!

Fibro pain is also borderline unbearable. 

Must get to the doctor ASAP. T3’s are better then the high doses of Naproxen and Acetemetophen. 

Now I will try to sleep.

September 15th 2015-Supplement 

While my pain level is sitting at the 8/9 again my day went well. Caught all my buses on time and such. All the dogs got along. I’ve taken three T3’s, two 500mg Naproxen, anxiety meds, and one cyclobenzaprine today. The third T3 wasn’t what I would call necessary, mind you I am notorious for waiting too long to take meds. I took it so I could hopefully sleep well and get a leg up on my pain. I have my son coming to work with me tomorrow so I have the stroller to push around. Hoping it doesn’t rain until later tomorrow.