Check In – March 3, 2019

I am feeling very unwell today. The barometric pressure has been doing this rollercoaster thing for the majority of the winter. It’s been really rough. Particularly with having to recover from surgery.

The symptoms I’m having right now are the ones that really get to me. I’m used to pain and stiffness and having to gently push through it. These symptoms I can’t really alleviate the I can with pain and stiffness.

The list includes: dizzy, exhaustion, lethargy, light headed, unsteady on my feet, upright is hard. The longer I remain upright, the harder it is to do so. Shakes, swelling, feeling like I’m going to faint. Ugh.

Advertisements

Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

Fire

My bones are on fire. The heat and pain from them radiate out into my muscles. The weather is changing. I also pushed myself too hard on my bike this week. It’s just so liberating. It gives me a sense of freedom. Yes it does cause pain but everything does really. It’s better in the long run for my body anyways. Exercise and building muscle tone helps support my joints and keep them moving. There is WAY less impact on my joints since I’m not plodding along on the concrete. Hills are nasty, I get off and walk most of them. 

I saw the doctor regarding the Cyst of Doom; Because it is a recurring issue surgery isn’t something that will help. I have to get X-rays done to make sure the joint is doing okay. Besides that I just brace it and deal with it, which could be years.

My hubby is going to fill my prescriptions today for T3’s and antibiotics for an abscessed tooth. And it’s Friday. Technically I have walks to do on the weekend but the pup lives in the same complex am I and he’s 12 and doesn’t need a crazy fast walk or anything.