Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

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February 20th, 2013

5:06am
My jaw is trying to explode again. Feels like someone is jabbing an icepick into the bottom left spot where the wisdom tooth used to be. Starting to wonder if I should go to the dentist. It’s not just the one spot that hurts, the other side hurts in the same spot as do the joints themselves.

Okay. Moderately productive day. Didn’t get to laze around as much as I wanted but I got some good down time in. Since I took some painkillers at 5am when the Little Man woke us up around 9am I wasn’t feeling too bad in the pain department. Just tired. Hands are doing the dry, cracking, bleeding thing. Doesn’t matter how much or what kind of moisturiser I put on. I’m thinking of putting on some of my steroid cream before bed. Here’s to hoping the little guy goes to sleep soon.

Today: Naproxen x 1, Acetemetophen & Methacarbanol (a muscle relaxer) x 1, Wellbutrin 300mg, Lyrica 150mg, Cipralex 20mg, Cymbalta 30mg

 

December 18th, 2012

Back from the dead so to speak, once again. The little man is keeping me very busy. I can’t believe he will be seven months old in a week. He has two teeth already and is teething like mad which makes him very clingy and sometimes a little screaming terror. He is the light of my life though.

It’s cold and dreary. This of course wreaks havoc on my joints. The plaquenil is definitely helping but it’s not like it goes away entirely. I have had some really intense stabbing pains in my fingers and wrists. Both joints in the thumb and the middle knuckles of the pointer, middle and ring finger of both hands. The infamous “T Zone” is really bad. Not as bad as it was, I think the drugs might be working for that too. I also have an exercise the physiotherapist showed me that helps ease the burning/numb feeling. Two doses of Tylenol Arthritis a day is necessary on top of the prescription drugs. I tested the theory a few weeks ago, which I do from time to time to see if I can just run on the prescriptions, it was a bad idea. I will wait until the weather is nice and warm before I even think about trying that again. The usual pain and dull ache in the major joints, certain movements cause a stabbing sensation in my upper back now that actually takes my breath away. Nausea, headaches, anxiety, agoraphobia, depression, the cold that will not end. And speaking of cold there is the cold toes. So cold they hurt, which of course refuse to warm up. Once I do get them warmed up if I uncover them or walk around too long without slippers they go right back to the frozen state. Appetite is minimal. Weight loss is coming slowly. My period is back to it’s usual trying to kill me mode. TMI ALERT: heavy clotted flow for almost the whole week….ugh. I have started getting flaky red spots on my eyebrows and my skull, with full on scaling at times. Looks like psoriasis, told the doc what it looked like (of course it went away by the time I got to the office) and he agreed that’s what it sounded like. It’s coming back again so I’m going to get pictures. Pretty much nails the arthritis down to psoriatic.

That being said the little man keeps me happy. I just snuggle him or play with him and it helps immensely. Doesn’t help with getting out of the house though. I know I really need to get out but it’s hard to get motivated. He needs to get out too but with the weather it’s hard to get around. My usual habit of walking around the mall is impossible right now, too many people, makes for panic attacks, and I have to ativan left. I may feel awful a good portion of the time but life is still good. I have friends and family I love, a roof over my head and food in the cupboards.

And this….

Fin's 1st Remembrance Day

August 29th, 2012

Woke up around 6:30am, my back was very sore. Fed the little guy, 6:30am seems to be his usual wake up time now, changed him and put him on the bed to sleep beside me. Took a Flexeril before going back to sleep. Woke up again around 10am, back was feeling considerably better but still had the achey flu feeling, legs from the knee down being particularly painful. Took a nap which helped a lot. Took it easy most of the day. Right before writing this post I ran full force into the corner of the bed, bashing my knee. Have ice on it at the moment. Going to be fun tomorrow. My hands haven’t been acutely painful the last couple of days, more this stiff squishy feeling that I think is gross. Hurts more when I close my hands. My wrists have had this weird separating type feeling, quite painful and it feels like the tendons aren’t quite holding my hands to my arm bone. Also gross.

 

Meds: Flexeril 10mg x 1, Ibuprofen x 4, T1 x 1, Lavodopo/Carbid x 1, Wellbutrin 300mg x 1, Cipralex 20mg x 1

Pain: 7-8