April 9th, 2013

Went to my GP today to refill my Lyrica prescription. We both agreed that my dose should be bumped up to three 75mg pills a day. It was rainy and cold and I had to wait 45min for my prescription to be filled. My hips are killing me. Strangely enough I’m still up and cooking. Will be heading to bed shortly. OH! And my GP actually said out loud that I have Psoriatic Arthritis and Fibromyalgia. We will see what the specialist has to say on the 16th. It’s funny how getting a real diagnosis makes me happy.

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April 2nd, 2013

I had a root canal yesterday. I feel gross. Kinda like someone smashed the side of my head with a sledge hammer. Once the jaw stops hurting I will be thankful that the tooth no longer hurts. Cost a pretty penny too. Apparently I still need a crown on the thing and since it’s the only molar left on that side I don’t have much choice in the matter. Well especially now I guess since I spent so much money on the root canal.

Energy levels have been drastically low. Warmer weather has been helping with the joint pain. Cymbalta seems to be working well on the anxiety/panic disorder. Also seems to be helping with the pain levels. I’ve been able to do a lot more cleaning and keeping of house.

The upper back and neck area have been really bad.

Meds are the same.

February 23rd, 2013

I feel like I’ve been hit by a drug and then run over repeatedly. I’ve totally over done it this week. Cranky Ange is Cranky.

 

Today:
300mg Wellbutrin, 150mg Lyrica, 20mg Cipralex, 30mg Cymbalta, 200mg Plaquenil, 1 tylenol w/muscle relaxant, 1 naproxen

February 20th, 2013

5:06am
My jaw is trying to explode again. Feels like someone is jabbing an icepick into the bottom left spot where the wisdom tooth used to be. Starting to wonder if I should go to the dentist. It’s not just the one spot that hurts, the other side hurts in the same spot as do the joints themselves.

Okay. Moderately productive day. Didn’t get to laze around as much as I wanted but I got some good down time in. Since I took some painkillers at 5am when the Little Man woke us up around 9am I wasn’t feeling too bad in the pain department. Just tired. Hands are doing the dry, cracking, bleeding thing. Doesn’t matter how much or what kind of moisturiser I put on. I’m thinking of putting on some of my steroid cream before bed. Here’s to hoping the little guy goes to sleep soon.

Today: Naproxen x 1, Acetemetophen & Methacarbanol (a muscle relaxer) x 1, Wellbutrin 300mg, Lyrica 150mg, Cipralex 20mg, Cymbalta 30mg

 

February 19th, 2013

Was exhausted and cranky most of the day after my 6 hour long outing yesterday. VERY stiff and sore when I woke up. Loosened up as the day wore on but the tiredness and cranky stayed. Around 4pm my energy levels lifted a wee bit which got me off the couch at least. I realized I really needed to to get some things done around the house so popped one of my all natural energy pills. Got what needed to be done finished. Still feeling really worn out and sore but at least I accomplished something.

My psychiatrist (or is it psychologist?) and I have agreed to switch me from Cipralex to Cymbalta. Cipralex helps with anxiety and depression while the Cymbalta helps with anxiety, depression and FM pain. SO the switch over started today. Cipralex dose dropped to 20mg, adding 30mg Cymbalta. Will do this for 7 days then drop the Cipralex dose to 10mg, keeping the Cymbalta at 30mg. Wait another 7 days, stop the Cipralex, bump the Cymbalta up to 60mg. One of the things I hate about new drugs is the side effects. Nausea is the most common side effect of this one and it’s definitely there.

Still haven’t gotten through to my Rheumatologist who I am supposed to see next month. HIGHLY unprofessional. I’m not pleased.

Today: 300mg Wellbutrin, 150mg Lyrica, 20mg Cipralex, 30mg Cymbalta

December 18th, 2012

Back from the dead so to speak, once again. The little man is keeping me very busy. I can’t believe he will be seven months old in a week. He has two teeth already and is teething like mad which makes him very clingy and sometimes a little screaming terror. He is the light of my life though.

It’s cold and dreary. This of course wreaks havoc on my joints. The plaquenil is definitely helping but it’s not like it goes away entirely. I have had some really intense stabbing pains in my fingers and wrists. Both joints in the thumb and the middle knuckles of the pointer, middle and ring finger of both hands. The infamous “T Zone” is really bad. Not as bad as it was, I think the drugs might be working for that too. I also have an exercise the physiotherapist showed me that helps ease the burning/numb feeling. Two doses of Tylenol Arthritis a day is necessary on top of the prescription drugs. I tested the theory a few weeks ago, which I do from time to time to see if I can just run on the prescriptions, it was a bad idea. I will wait until the weather is nice and warm before I even think about trying that again. The usual pain and dull ache in the major joints, certain movements cause a stabbing sensation in my upper back now that actually takes my breath away. Nausea, headaches, anxiety, agoraphobia, depression, the cold that will not end. And speaking of cold there is the cold toes. So cold they hurt, which of course refuse to warm up. Once I do get them warmed up if I uncover them or walk around too long without slippers they go right back to the frozen state. Appetite is minimal. Weight loss is coming slowly. My period is back to it’s usual trying to kill me mode. TMI ALERT: heavy clotted flow for almost the whole week….ugh. I have started getting flaky red spots on my eyebrows and my skull, with full on scaling at times. Looks like psoriasis, told the doc what it looked like (of course it went away by the time I got to the office) and he agreed that’s what it sounded like. It’s coming back again so I’m going to get pictures. Pretty much nails the arthritis down to psoriatic.

That being said the little man keeps me happy. I just snuggle him or play with him and it helps immensely. Doesn’t help with getting out of the house though. I know I really need to get out but it’s hard to get motivated. He needs to get out too but with the weather it’s hard to get around. My usual habit of walking around the mall is impossible right now, too many people, makes for panic attacks, and I have to ativan left. I may feel awful a good portion of the time but life is still good. I have friends and family I love, a roof over my head and food in the cupboards.

And this….

Fin's 1st Remembrance Day

August 1st, 2012

Seems fitting that on the first day of a new month that I start a new regimen for pain management. My breast milk production has gotten low enough that I don’t need to pump to feel comfortable. The little guy has also gone to spend the day with his Babcia and Dziadek (that’s Grandma and Grandpa in Polish which are my husband’s parents). I figured I would take this as the opportunity I needed to get things on the go. So today I have started Lyrica and I also am trying Voltaren Emulgel. The Lyrica might make me sleepy so I thought it would be good to try it with Fin gone. With the Voltaren I can’t touch him for 2-3 hours after I put it on and I have to make sure I wash my hands first. Seems to be helping a wee bit already. I’m hoping if I can get a few applications of it in today I will be able to bring some of the inflammation down in my knuckles and wrist a bit so when I am alone with Fin I can handle it a bit better until Rob gets home and can take care of him for the few hours I need to let the medication soak in.

The handful of pills I just took, what I like to sarcastically call “breakfast” was as follows:
1 x 300mg Extended Release Wellbutrin, 2 x Tylenol 1’s, 1 x Naproxen, 1 x 75mg Lyrica (I will be taking two doses a day), 1 x folic acid, 1 x fish oil, 2 x Vit D.
At last some of it is supplements.
Oh yes, and 1 application if Voltaren on both hands and wrists as well as the dreaded “T-zone”.

What hurts today? Well it would be easier to tell you what doesn’t hurt, but here’s the run down at this point in the day. Wrists, hands and T-zone are the worst. Hips, knees and ankles are a close second. Then the usual all over muscle ache and tenderness. It’s been about three days since my hands got REALLY bad. Monday I could barely use them, the only reason Fin got cared for properly was because Rob was home. Otherwise I would have had to call my Mom. Yesterday was a wee bit better. Running around on transit with the stroller made them super angry again today. Broken glass feeling in the knuckles and wrists. Pain that radiates out in either direction from the joints so the whole hand hurts, pain radiates out from the wrists so that it almost feels like Carpal Tunnel Syndrome. My right hip/knee/ankle seems considerably worse then the left side. My toes hurt, which is always a weird feeling. And they are cold. Hands are the opposite, they are warm.

I will update later to fill in the rest of the day since it’s still early.

 

Meds: 1 x Wellbutrin, 1 x Lyrica, 4 x T1’s, 1 x Naproxen, 1 x Voltaren application

Supplements: 1 x fish oil, 1 x folic acid, 2 x Vit D

Pain: 9

Mood: 7.5