Chronic pain info dump time!
Those red lines? Those are the paths my pain is following right now. It radiates out as well.
That dot? It feels like I’ve been impaled with a spear at that spot, and the spear is still there.
They tell me this is a fun combination of spinal compression, shitty connective tissue, and the nerve centre in my upper back being all fucked up. The “dot” is where a bunch of scar tissue hangs out from an work accident from years ago.
Meds so far today: Tylenol Arthritis, Naproxen, Cyclobenzaprine, CBD’s.
I have to work a full shift today too. Blarg.
#chronicillness #chronicpain #mylife #snapshot #nervepain #musclepain #jointpain #psoriaticarthritis #arthritis #undifferentiatedconnectivetissuedisease #fibromyalgia #oldwounds #scartissueisabitch #flaring
I’m back from one of my usual breaks. No matter how hard I try I can’t seem to write EVERY day and stop for months at a time in a pretty regular cycle. My most recent discovery is that really warm weather makes me really sore, the high pressure doesn’t get along with my joints. Still not as bad as when the weather turns crappy like it has been the last few weeks. LOTS of rain, seems Mother Nature is making up for the dry summer. With the cooler temperatures the pain and stiffness, particularly in my hips, feet, shoulders and hands. Certain joints in my feet have been giving me grief. The Raynaud’s Phenomena in my feet has gotten steadily worse, my toes are pretty much icicles all the time now. Drives me bonkers, I hate it. The cooler weather has also woken up the pain in my upper back, so I’ve been feeling pretty sore and tired and frustrated. There’s been no change in medication or anything like that. My body has almost completely reverted to it’s super food sensitive state. In December I will be going back to see my Rheumatologist, so I’m looking forward to that. Psoriasis is getting more noticeable on my scalp and eyebrows, still very mild though all and all.
Things have been busy. The Little Man is walking and getting into everything. It’s also summer which means camping trips and such. I was feeling really good with all this heat. I did my best not to complain because it got REALLY hot REALLY fast. Something has gone funny under the surface though. It’s still warm but things feel broken again. I am seriously thinking about investing in a barometre so I get some warning at least. The burning pain of the infamous “T-Zone” has been mild. Hands/wrists, hips, ankles and feet have been bad. The second joint of my right big toe, the Medial Cuneiform, hurts A LOT and makes walking an interesting adventure…here’s a picture:
My shoulders have been pretty bad this week too. My right one is particularly pissed off, I did something to it picking up the boychild last night. I’ve been experimenting with only taking my afternoon dose of Lyrica if I feel crappy. Not sure of that’s affecting how sore I’ve been lately or not. Either way, it sucks. The Psoriasis on my head is getting pretty bad, I can actually see the red scaly spots now.
I feel like I’ve been hit by a drug and then run over repeatedly. I’ve totally over done it this week. Cranky Ange is Cranky.
300mg Wellbutrin, 150mg Lyrica, 20mg Cipralex, 30mg Cymbalta, 200mg Plaquenil, 1 tylenol w/muscle relaxant, 1 naproxen
I’m in a really bad way right now. It’s been awhile since I felt this bad. The wet and cold weather hasn’t been helping much. I think what really did it was a combo of the last two days. I went to the chiropractor yesterday, been going for a few weeks, working on my upper back. I like to go once every few years to get everything popped back into place. After this though I might never go again. He “adjusted” my cervical spine, which I have never had done in my life. It hurt. A lot. And it hurt a lot this morning. I felt awful when I woke up. High pain levels, about an 8. I had to go out in the afternoon though to see the eye doctor to check my contacts and order a years supply. I thought the Man was going to be home before I had to leave but he was still stuck at work. This wouldn’t have been so bad if he had not forgotten the stroller in the trunk. I had to take the Little Man with me in the carrier, so I had an extra 18 pounds anchored around my neck and upper body. The Man did pick us up from the mall though. Needless to say I felt pretty awful by the time we got home. Making dinner pretty much finished me off. Even after taking my nightly meds (75mg Lyrica, 30mg Cipralex & 400mg Plaquenil) as well as one Naproxen and two AC&C (Acetaminophen with caffeine and codeine) my pain levels are sitting at an 11. Have also been getting numbness and having my left arm fall asleep randomly. This means my nerve compression is back in full force. Just waiting for the little guy to get tired enough to fall asleep.
Lyrica 75mg x 2, Wellbutrin 300mg x 1, AC&C x 4, Naproxen x 1, Voltaren Emulgel x 1, Plaquenil 200mg x 2, Cipralex x 30mg
It’s 2013…crazy I tell you. One would thing I would get used to the years changing but apparently not.
I’ve been feeling pretty sore, stabbing pains in the joints, aching. Tingling and numbness in the fingers, guess those compressed nerves in my back are at it again. I do the head tilt exercises a few times a day and it keeps it down to a dull roar. Headaches, some nausea. Energy levels haven’t been too bad. I’m getting cabin fever though. The Little Man was quite sick for the past week, combine that with my own cold/flu and the crappy weather I haven’t been getting out of the house. Going out today to see the family for a wee bit and then Hubby has organized a date afternoon for us tomorrow so that will help. I’ve been sick with this cold/flu for about two months now. Seems to have restarted, like it’s on a loop. Really sore throat, sinus congestion. So far it hasn’t hopped back into my chest. I’ve had to do one round of antibiotics, I’m really hoping to avoid that again. I take some of the codeine based cough syrup for the sore throat. The psoriasis-like symptoms are still around, haven’t had any full on scaling again but the dry flaky eyebrows and red itchy scalp remain. I know, it sounds like dandruff but the special shampoo for that doesn’t work. Sleep has been elusive until I reach a state of exhaustion. I’ve stopped taking the high doses of acetaminophen (Tylenol Arthritis), taking naproxen when I can’t handle the pain any more. I’m concerned for my poor liver.
I’m starting something new with listing my meds, I’m going to list what I should take in a day, at the end of the day of I can and if I need to I will alter what I did or did not take.
Lyrica 75mg x 2, Wellbutrin 300mg EL, Cipralex 30mg, Plaquenil 400mg, Naproxen x 1, Voltaren Emulgel x 1
Back from the dead so to speak, once again. The little man is keeping me very busy. I can’t believe he will be seven months old in a week. He has two teeth already and is teething like mad which makes him very clingy and sometimes a little screaming terror. He is the light of my life though.
It’s cold and dreary. This of course wreaks havoc on my joints. The plaquenil is definitely helping but it’s not like it goes away entirely. I have had some really intense stabbing pains in my fingers and wrists. Both joints in the thumb and the middle knuckles of the pointer, middle and ring finger of both hands. The infamous “T Zone” is really bad. Not as bad as it was, I think the drugs might be working for that too. I also have an exercise the physiotherapist showed me that helps ease the burning/numb feeling. Two doses of Tylenol Arthritis a day is necessary on top of the prescription drugs. I tested the theory a few weeks ago, which I do from time to time to see if I can just run on the prescriptions, it was a bad idea. I will wait until the weather is nice and warm before I even think about trying that again. The usual pain and dull ache in the major joints, certain movements cause a stabbing sensation in my upper back now that actually takes my breath away. Nausea, headaches, anxiety, agoraphobia, depression, the cold that will not end. And speaking of cold there is the cold toes. So cold they hurt, which of course refuse to warm up. Once I do get them warmed up if I uncover them or walk around too long without slippers they go right back to the frozen state. Appetite is minimal. Weight loss is coming slowly. My period is back to it’s usual trying to kill me mode. TMI ALERT: heavy clotted flow for almost the whole week….ugh. I have started getting flaky red spots on my eyebrows and my skull, with full on scaling at times. Looks like psoriasis, told the doc what it looked like (of course it went away by the time I got to the office) and he agreed that’s what it sounded like. It’s coming back again so I’m going to get pictures. Pretty much nails the arthritis down to psoriatic.
That being said the little man keeps me happy. I just snuggle him or play with him and it helps immensely. Doesn’t help with getting out of the house though. I know I really need to get out but it’s hard to get motivated. He needs to get out too but with the weather it’s hard to get around. My usual habit of walking around the mall is impossible right now, too many people, makes for panic attacks, and I have to ativan left. I may feel awful a good portion of the time but life is still good. I have friends and family I love, a roof over my head and food in the cupboards.