Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

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May 20, 2015

Sometimes the pain and exhaustion feels like a suffocating wave. I held it together for the day while I was out. My right side has been causing more pain then the left. Still hurts on the left but it is rarely debilitating. I knew after the first block or so of walking that it was going to be really painful later on. I did my best to take it easy. As soon as I lay down on my bed when I got home it started in my hip, then the ankle, now the knee and a twinge coming on in the shoulder. The pain has a life of it’s own when it gets this bad. It has a pulse. A personality. You find yourself bargaining with it. I’m scared because now that I’m finished my arthritis meds everything is going to get worse and worse. Until I get pregnant anyways, and that’s if I go into remission this time. We need to hurry up and move and get the tenant in so more cash starts flowing so I can stop working.