Check In – March 3, 2019

I am feeling very unwell today. The barometric pressure has been doing this rollercoaster thing for the majority of the winter. It’s been really rough. Particularly with having to recover from surgery.

The symptoms I’m having right now are the ones that really get to me. I’m used to pain and stiffness and having to gently push through it. These symptoms I can’t really alleviate the I can with pain and stiffness.

The list includes: dizzy, exhaustion, lethargy, light headed, unsteady on my feet, upright is hard. The longer I remain upright, the harder it is to do so. Shakes, swelling, feeling like I’m going to faint. Ugh.

Winter Bones

I made it nine days this time without Naproxen. Only took it for three days before my ankle calmed down, which was nice.

What wasn’t nice was the sudden plummeting temperatures. So the nine days has ended. It will be a couple more days I think before these pain levels drop.

I think I will take it daily again but take special care around my period in case I need to take the Cambria for the now regular migraine.

My doctor’s office has once again dropped the ball and have not called about the appointment I need with a neurologist.

Sigh.

High pain levels really do a number on my mental health.

Fast Broken

Well 7 days had been my original goal for my Naproxen/Rabeprazole fast and I made it. I’m happy about that. Not happy about my right ankle and foot flaring this badly, this suddenly.

3-5 days and hopefully foot will stop hurting and I can stop again.

Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

Left Wrist Issues

I’ve posted before about the ganglion cyst in my left wrist. Finally talked to the doctor about it. I need to go for x-rays to check for joint damage from arthritis. I am waiting on the call for my referral to a specialist to have to cyst removed.

It hurts. A lot. I’m pretty sure it presses on a nerve as when it gets really bad my whole hand, elbow, and shoulder hurt along with it. For the first time in a long time I am concerned about my health. I need to go back to work.

Here’s to hoping the x-ray turns out fine. I’ve been advised to wear a brace with a hard bottom until further notice.

General Update – June 11th, 2017

Gods my joints hurt so much, particularly my legs. I fell on Wednesday last week, full face plant onto the sidewalk, with the added fun of my six month old rolling into traffic in her stroller. 

Good times. *sarcasm*

I had a scraped knee and a sore ankle, things have been hurting more as the days go along. Shoulders are bad, as are hips. Ankle and knees are now acting up, particularly on the right sides (the knee that hit the ground first when I fell). My spine has also been really painful.

Yesterday I pushed the patio door closed and managed to mess up my left hand. Spouse says it sounds like a work injury he’s had a few times. Seems to be nerve related. My whole left arm hurts though when it gets going.

The weather is shifty as well which never helps.

Uhm. What else. In the last four weeks we have painted, packed, moved, cleaned two different places, and mostly unpacked into our new place. Had my sons fifth birthday two weeks after we moved in. 

Oh and I’m smoking 5-10 cigarettes a day currently.

Madness I tell you.

March 25th, 2017

Edited to add: Did some very gentle hip opening stretching, did get a small amount of relief for a moderate period of time. Also did some stretches for my neck/t-zone that a physical therapist taught me when I was pregnant with Fintan. 
Pretty awful today overall. A lot of myofacial pain, some joint pain. Joint pain on the right side; wrist, hip, ankle. My spine, t-zone included, also bad. Nausea, hot/cold flashes, sweats, sinus congestion, mucousy cough lingers. Nerve/spine pain is bad right this second. My jaw has been very painful, a headache accompanies this of course. There was some major upheavals yesterday, I’m guessing that’s why I feel extra awful today. Stupid stress hormones.

Still managed to care for two kids mostly myself, make breakfast/lunch/dinner, also got a nap thanks to my spouse. Oh and Little Bug (the baby) woke up at 3am and didn’t really go back to sleep. She’s a handful right now. Four months old today, so she is hitting a growth spurt plus sleep regression and teething. Plus my son has been acting out more due to the changes. Still seriously considering getting him assessed. He’s been having bad screaming fits when upset/angry/frustrated. He’s a great big brother, I’m really proud of him.

I have a good friend coming to visit tomorrow. We’ve managed to hang out almost every Sunday for the past month and a bit. Mainly because they come here. So that will be nice. Kidlets will be off visiting with my parents. 

Hopefully I feel less like shit tomorrow.