Went to sleep around 11pm. Woke up at 2am with bad hip pain. Also noticed a sore spot/kink on my left side before falling asleep. It is tender and contributing to overall discomfort. Took a Tylenol 3 a wee bit ago. Will be laying down again shortly to try to get more sleep.

January 6th, 2013

It’s 2013…crazy I tell you. One would thing I would get used to the years changing but apparently not.

I’ve been feeling pretty sore, stabbing pains in the joints, aching. Tingling and numbness in the fingers, guess those compressed nerves in my back are at it again. I do the head tilt exercises a few times a day and it keeps it down to a dull roar. Headaches, some nausea. Energy levels haven’t been too bad. I’m getting cabin fever though. The Little Man was quite sick for the past week, combine that with my own cold/flu and the crappy weather I haven’t been getting out of the house. Going out today to see the family for a wee bit and then Hubby has organized a date afternoon for us tomorrow so that will help. I’ve been sick with this cold/flu for about two months now. Seems to have restarted, like it’s on a loop. Really sore throat, sinus congestion. So far it hasn’t hopped back into my chest. I’ve had to do one round of antibiotics, I’m really hoping to avoid that again. I take some of the codeine based cough syrup for the sore throat. The psoriasis-like symptoms are still around, haven’t had any full on scaling again but the dry flaky eyebrows and red itchy scalp remain. I know, it sounds like dandruff but the special shampoo for that doesn’t work. Sleep has been elusive until I reach a state of exhaustion. I’ve stopped taking the high doses of acetaminophen (Tylenol Arthritis), taking naproxen when I can’t handle the pain any more. I’m concerned for my poor liver.

I’m starting something new with listing my meds, I’m going to list what I should take in a day, at the end of the day of I can and if I need to I will alter what I did or did not take.


Lyrica 75mg x 2, Wellbutrin 300mg EL, Cipralex 30mg, Plaquenil 400mg, Naproxen x 1, Voltaren Emulgel x 1

October 28th, 2012

I’m going to try to do my updates once a week since doing one everyday isn’t working again.

Weather is the pits so I’m sore and stiff. Hands were pretty swollen this morning. Pain seems to be a bit better and though I was stiff it was better then it usually is on a chilly day. The Plaquenil seems to be starting to work. The upper back is getting bad again. Haven’t had the chance to do more then take Tylenol Arthritis, the little man keeps me really busy. I’m really tired. Started taking Melatonin again so I can sleep. Colon has started to go back to it’s usual unhappiness. Tomorrow I start the transition back on to my “hippie” diet.

Started a FirstCleanse last week. Does seem to be helping with the tiredness, perhaps with the pain as well.

300mg Wellbutrin, 20mg Cipralex, 150mg Lyrica, 1 Plaquenil, 2 Tylenol Arthritis, 1 Tumeric/Bromelain

August 7th, 2012

I should be sleeping, both my hubby and my baby are sleeping. I seem to have troubles sleeping at night again which is problematic since baby is awake most of the day so I can’t really sleep then. We have all the lights off, Olympics on the TV, watching the thunderstorm. It’s beautiful. We are sleeping on the couch since the canoeing and kayaking events start at 1:30am. I will more then likely sleep through them. Hopefully anyway’s. The Lyrica is working well, definitely less muscle pain. Joints still hurt like a bitch but dealing with one chronic pain as opposed to two can feel like heaven sometimes. I’ve been using the Voltaren on my shoulders/upper back/neck, hips and ankles. I can’t use it on my hands since it will be absorbed into the baby’s skin if I do. I’m itchy as hell. Little round dots are popping up on the itchy spots. It’s weird. And a red rash on the itchy spots. Itchy scalp too. It sounds melodramatic to say all my joints hurt but they do. The most aggravating is the hips, knees and toes. I’m used to the upper body pain. The lower body pain I haven’t had this bad in awhile. Not much in the way of an appetite. Random nausea. Falling asleep sitting up during the day mixed in with random bouts of mania where I’ll clean for an hour. My breasts are finally hurting less and seem to have stopped leaking, unless he cries really hard then I get a bit. Time to take some Naproxen, a T1, slap on some Voltaren and try to get some rest.

P.S. The main itchy spot is the junction where neck, shoulders, and back meet, the centre of the “T” zone. When I scratch though it feels numb and then the itching gets worse. It’s weird.


Meds:  75mg Lyrica x 2, T1 x 2, Naproxen x 1, 300mg Wellbutrin x 1, 20mg Cipralex x 1

Supplements: 1,000mg Vit D x 3, 1 x Prenatal Vit(using them up), Folic Acid x 1, NutraSea Fish Oil x 3

Pain: 7

Mood: 6


July 12th, 2012

It’s quite a lovely morning. Went out to get the mail a little while ago. My little man’s pictures arrived and they are amazing. This brightens my day.

I didn’t sleep well, this heat is killing me. I seem to be uncomfortable and in pain regardless of the weather now. It’s hot and humid which makes it almost impossible for me to sleep. I fell asleep holding Fintan and wound up with my neck at a right angle so now it hurts a lot. Couple that with the fact he’s getting heavier the T area is returning to it’s painful self. The deep throbbing pain, burning and tense feeling is back and strong today. Shoulders, arms, elbows, wrists also have that deep flu like ache. My hands are very painful and claw like. The joints are having stabbing pains that shoot down into my hands and wrists. It’s not an enjoyable feeling. Hips, knees and ankles are moderately painful. Today will be a resting day for sure. Hopefully will be able to get to some crochet and some scrapbooking. At the very least I should be able to read. Will update later.

Pain: 9.5
Meds: 1 x T1
Mood: 6

May 1st, 2012

First off wishing a Blessed Beltaine to all!

Secondly, yes I am alive and relatively well.

I’ve been up since 1 a.m. so if I seem a little random that’s why. Sleep has become elusive. I’m exhausted. Unbelievably so at times. But I’m averaging about four hours a night at the moment. I’ve also started waking up in the middle of the night again. Every few days though I will sleep for like 8-10 hours. When I am awake I do try to be constructive, like writing and such, but it just seems so hard. My brain is all foggy. It’s like Fibro Fog on steroids. I have managed to get the baby’s room essentially set up with the help of Rob, Ashley, and my Mum. It’s just a matter of going through a few more boxes of crap that I moved to the bedroom. My nesting instinct turned into nesting PANIC, hehe.

My hands swell A LOT these days. A lot more redness in them as well. There was always swelling and redness before but now it’s almost scary. Seems the worst at night, I’ll wake up to hit the loo and my hands will be huge and completely red from fingertips to wrists. Seems to go down a bit once I get them moving in the morning. If I do a lot of work with my hands though I can almost watch them swell. I’m sure pregnancy has something to do with this. We shall see how much it subsides after. My feet are also starting to swell. It feels like they are flattening as well. Which is an interesting feeling seeming as how I already have fallen arches. Needless to say this makes my knees angry. I’m sure the extra 25 lbs I’m carrying around is also a major cause. My hips/pelvis/lower back get extremely painful, as does the areas where the round ligaments in my low abdomen and such are. When I walk I have to make sure I take a lot of sit breaks. My knees, calves and feet get very painful very fast. They also cramp up in no time. They do that when I stretch too. And the foot cramps! Oh my Gods! I’ve never felt anything like that in my life! The t-zone in my upper back is being overshadowed most of the time by everything else. There are at least three days out of the week though where it flares up really bad. My entire back aches. My right side is particularly painful because baby has decided that is the most comfortable spot. There’s ALL this room on the left but apparently it’s not good enough, hehe!

Speaking of the baby everything is going very well. My womb was measuring large but that seems to have settled itself. Baby seems to be happily settled into it’s almost birth position. Head down low, back curving along my right side, butt right underneath my right breast and DIGGING into my spine (thanks baby!), arms and legs all aflutter on the left side. We have argument’s now, the baby and I. It feels like the baby is trying to escape out of my spine so I give a gentle push to the left which helps immensely. Baby will shove back. Or move over and then five minutes later go back to the usual spot and haul off and kick my right side and spine. It’s no surprise I suppose, given the child’s parents! I am 34 weeks and three days (approx.), birth is looming. Part of me dreads it, partly because I HATE hospitals with an passion and because once the baby is born then I have to share. Another part wants the baby out so I can meet the child and find out if it’s a girl or a boy so I can stop calling it random names, but also because my body is getting very unhappy about all this. I worry I won’t be able to breast feed. There is a very god chance I will have to go back on my heavy meds right away just so I can care for the baby. I’m hoping I can take some lower level ones that will allow me to keep breastfeeding.

That’s all for now, I think it is time for a nap.

OH! I had a massage appointment last week, it was fantastic. I have another this week!

Pain: 8



February 6th, 2012

Sleep has been elusive. I’ve been waking up every few hours. We went out to see good friends of ours for the Superbowl. The hubs and his buddy watched the game. Myself and his wife sat and shared war stories about FM and chronic illness. Was fun but by the end of the night my whole back and neck had seized up, my head felt like it was in a vice and any light source made me want to vomit. So when we got home we organized the budget because it helps both of us relax a wee bit…well only in the sense that we have a plan at least. And then the hubby said to sleep, so I did.

The first three hours was the coma-like sleep that accompanies high pain levels. I’ve been waking up every two to three hours since. Usually a combination of neck and hip attacking me. Hubby seems to be waking up with me more often which I figure is why he seems to “get it” more then he used to. It’s also helpful because he calms me down when I almost freak out because all I want is some sleep.

Keep having nightmares about having to go back to work, always as a cook. Some part of the kitchen always starts to smolder and then catch on fire but no one seems to care. So I leave. They suck either way.

I’m typeing this on my phone…the laptop is too far away…and my fingers hurt. Here’s to hoping I can get back to sleep. Might be difficult with Miss Kitty trying to burrow into my neck. She’s just so damn cute…and so infuriating all at the same time. I do love her so.

Oh yeah…I stopped taking ES Tylenol on Saturday. One at a time wasn’t cutting it for anything anymore. And then two doses of two wasn’t working. I swear it makes the baby sluggish. I also talked to an Aunt who almost had liver failure in the last few months because of long term Tylenol use. So yeah. It’s off the menu.

Hopefully I will remember to update later.

Pain: 9

Mood: 4