So money is tight, I need new compression gloves and braces for my thumbs. I don’t have the approximately $200 I need for them so I bought a $6 roll of sports tape to try out. Works pretty good! Particularly for work where I still need some mobility. I’ve been warned the sticky stuff will irritate my skin over time but it works for now. Here’s my hands today. Below that are some pictures from last week.
Once again it is time for a round of “What the fuck do I do?”.
I really do love my job. The time with the dogs is awesome and therapeutic, the walking is good to a certain degree but I WAY overdo it pretty much every day. I worry about joint damage now that I’ve been off my arthritis medication for so long. I can dope myself up to high heaven to get through the day if I need too get through the pain but it doesn’t stop damage. Living in a country with public medical care is fantastic, I’m frustrated though that because I missed my last appointment with my Rheumatologist in August that I have to wait until February to see her again. There’s questions I’d like to ask about pregnancy, let alone how to keep my joints safe while I am off my medication.
Remember the allergic reaction I had the other day? Well I had another reaction the next day while at work. Those two days I was working at the doggie daycare side of the business not just walking. I have a mild dog allergy that I really had never noticed before, I have been around or had dogs in the house my whole life. Apparently when you stuff a bunch of them in a building though and then have me sweep up the hair, THEN it becomes a problem, which makes sense. The hair and dander would probably make anyone react. It’s not even that it’s filthy or anything, it’s VERY clean but enclose everything and yeah. Issues. Good thing is now that I am not taking Lyrica or Plaquenil I can tale allergy medication without going into a drug induced coma. Not sure how that will work when I get pregnant.
I could very easily get a retail type job and make more money with considerably less work. I would lose A LOT of things though. With my current job I can stop and go as I need too. If I am feeling extra gross I can stay in the backyard with the dog or take it to the nearest dog park and they can run about. When the weather is the shits I only have to take them out to pee/poop and then we go inside to play. I can take my son with me to pretty much any walk if I need too. When I worked four hours at the daycare on the weekend he got to come with me and spend the whole time with me and play with the pups. This is not even touching on the fact it is a tiny local business that I work for.
Okay I feel a little better after dumping all this on the page. Thanks for listening folks.
I’m back from one of my usual breaks. No matter how hard I try I can’t seem to write EVERY day and stop for months at a time in a pretty regular cycle. My most recent discovery is that really warm weather makes me really sore, the high pressure doesn’t get along with my joints. Still not as bad as when the weather turns crappy like it has been the last few weeks. LOTS of rain, seems Mother Nature is making up for the dry summer. With the cooler temperatures the pain and stiffness, particularly in my hips, feet, shoulders and hands. Certain joints in my feet have been giving me grief. The Raynaud’s Phenomena in my feet has gotten steadily worse, my toes are pretty much icicles all the time now. Drives me bonkers, I hate it. The cooler weather has also woken up the pain in my upper back, so I’ve been feeling pretty sore and tired and frustrated. There’s been no change in medication or anything like that. My body has almost completely reverted to it’s super food sensitive state. In December I will be going back to see my Rheumatologist, so I’m looking forward to that. Psoriasis is getting more noticeable on my scalp and eyebrows, still very mild though all and all.
Things have been busy. The Little Man is walking and getting into everything. It’s also summer which means camping trips and such. I was feeling really good with all this heat. I did my best not to complain because it got REALLY hot REALLY fast. Something has gone funny under the surface though. It’s still warm but things feel broken again. I am seriously thinking about investing in a barometre so I get some warning at least. The burning pain of the infamous “T-Zone” has been mild. Hands/wrists, hips, ankles and feet have been bad. The second joint of my right big toe, the Medial Cuneiform, hurts A LOT and makes walking an interesting adventure…here’s a picture:
My shoulders have been pretty bad this week too. My right one is particularly pissed off, I did something to it picking up the boychild last night. I’ve been experimenting with only taking my afternoon dose of Lyrica if I feel crappy. Not sure of that’s affecting how sore I’ve been lately or not. Either way, it sucks. The Psoriasis on my head is getting pretty bad, I can actually see the red scaly spots now.
Woke up in a lot of pain this morning, an 8-9. Bad stiffness, pulsing body pain, particularly bad in my hands and wrists. I’m exhausted emotionally and physically. I feel empty, drained. But I am taking great joy in watching my son crawl around the house, learning new things, surprising me with his comprehension. I asked him if he wanted milk, he nodded his head yes. I had suspicions that he was starting to understand what that meant, it’s really neat to actually see it in action though.
The reason I am feeling the way I am today is due largely in part to my day yesterday. My cousin, a cousin who I loved very much, was killed a couple weeks ago while operating heavy machinery at work. He was a young man with small children and a very amazing human being. His funeral was yesterday in Courtenay. Getting there involves a two hour ferry ride and a two hour drive both ways, 8 hours of travel. And then a very moving ceremony. While it has helped me begin my healing process, my acceptance of what has happened, it was exhausting and extremely hard for me.
So today is dedicated to resting.
Been feeling really tired. Right hip has been really bothering me as well as the second joint in my right foot. Stiffness and such. Picked up a bottle of Tylenol 1’s.
Confirmed mild Inflammatory Arthritis, undetermined kind as of yet, more than likely Psoriatic.
Partially confirmed Connective Tissue Disease, positive blood test, physical symptoms still minimal, sort of a “hurry up and wait” on this one, need to wait for more symptoms to appear.