Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

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Flare Tracker – 30•07•2018

Chronic pain info dump time!

Those red lines? Those are the paths my pain is following right now. It radiates out as well.

That dot? It feels like I’ve been impaled with a spear at that spot, and the spear is still there.

They tell me this is a fun combination of spinal compression, shitty connective tissue, and the nerve centre in my upper back being all fucked up. The “dot” is where a bunch of scar tissue hangs out from an work accident from years ago.

Meds so far today: Tylenol Arthritis, Naproxen, Cyclobenzaprine, CBD’s.

I have to work a full shift today too. Blarg.

#chronicillness #chronicpain #mylife #snapshot #nervepain #musclepain #jointpain #psoriaticarthritis #arthritis #undifferentiatedconnectivetissuedisease #fibromyalgia #oldwounds #scartissueisabitch #flaring

Pain Level 11-12

It’s a rare occasion when I hit this high on the pain scale. I’ve taken all possible medications:

  1. 1.5 Tylenol 3 tablets
  2. 1 500mg Naproxen tablet
  3. 1 Cyclobenzaprine tablet
  4. Smoking marijuana (w/ bong)

It’s all mostly kicked in. I am a slow machine. Time for a nap already.

November 14th 2015

Woke up feeling relatively well, for me this means pain levels starting around 6. Took my morning medication in a timely fashion since I had a walk to do today with the child in tow. I skipped my afternoon dose of Tylenol 3 since I didn’t do a lot of walking, not taking into consideration the housework I got up to. Oh and the child alone for 80% of the day. He’s such a part of my life that I forget to put spoons aside. He was well behaved with minimal threenager outbursts at least. By the time I took my second dose it was close to 6pm. FAR too long to wait. While my hips weren’t on fire the rest of my body is achy and sore and exhausted. Why do I keep trying to keep my T3 usage down to two you ask? I am an addict in recovery and I am terrified of opiates. It has been five years since my last major indiscretion. I was clean for three years before I let myself relax and start having a drink under very particular circumstances. I’ve read of people in recovery getting tripped up by pain killers SO OFTEN. So yeah, it makes me nervous. Pain levels spiked at a 9, sitting around a 7.5-8 currently. Once I get the little man to bed I can crawl into bed. I have to work tomorrow, it’s usually my only guaranteed day off but my boss has been working for about two months without a break so I figure I can go hang out with the dogs at the daycare for a half shift so she can stay home with her hubby and little one.

**Allergic Reaction Note**
About an hour ago I became REALLY itchy and broke out with a few hives. The only things different about today was making flat bread with some masa flour for lunch and goulash with some Meat Magic from Watkins added. I’ve had masa flour before but not for about six months and since I ate them around noon I don’t think hives would wait 6 hours. I’m guessing something in the seasoning ticked something off. The itching is generally around joints so it could also be due to an impending flare.