Interstitial Cystitis Flare – 08/07/2019

Content warnings: blood, intimate details of my nether regions, urine

.

.

.

.

.

.

So.

Things have been epically stressful in my life since June 24th.

I thought I was taking enough care with what I was eating and drinking. After all, it’s been YEARS LITERALLY since my Interstitial Cystitis was any sort of issue. It’s been so long I had to look up relief methods.

The flare isn’t entirely unexpected, but it still caught me a bit off guard. Symptoms include high pain levels (ache/burn) in my nether regions and lower abdomen, bladder spasms, urgency, light bleeding.

I have medicating with CBD/THC, acetaminophen, naproxen, and cyclobenzaprine. Drinking lots of water. Avoiding all trigger foods.

Advertisements

Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

Flare Tracker – 30•07•2018

Chronic pain info dump time!

Those red lines? Those are the paths my pain is following right now. It radiates out as well.

That dot? It feels like I’ve been impaled with a spear at that spot, and the spear is still there.

They tell me this is a fun combination of spinal compression, shitty connective tissue, and the nerve centre in my upper back being all fucked up. The “dot” is where a bunch of scar tissue hangs out from an work accident from years ago.

Meds so far today: Tylenol Arthritis, Naproxen, Cyclobenzaprine, CBD’s.

I have to work a full shift today too. Blarg.

#chronicillness #chronicpain #mylife #snapshot #nervepain #musclepain #jointpain #psoriaticarthritis #arthritis #undifferentiatedconnectivetissuedisease #fibromyalgia #oldwounds #scartissueisabitch #flaring

Update – November 21st 2015

After my hefty morning dose of medicine I curled up on the couch and snuggled with the little man, the Big Man was sitting close by. The bedroom probably would have been better but I’ve barely seen the menfolk after working 12 days straight. After an hour or so I got up and ate something and felt somewhat better, things were down to a dull roar, so about a 10. Took one T3 in the late afternoon, will be taking another plus Naproxen and Cyclobenzaprine to keep on to of things. I know where I slipped up, well outside of agreeing to work that many days consecutively anyways. Timing is everything when it comes to pain, particularly inflammatory pain. It’s like a wildfire. Without containment it will rage through everything. I will be setting up a rotating schedule for my Naproxen so I don’t wait so many days in between courses. Three days on, four to five days off should get me through Winter. A T3 at morning, noon, and night, which I think works out to five hours between doses. Cyclobenzaprine will be taken at bedtime as currently prescribed, as much as possible. I used this drug before I was even pregnant with the little man so I know the instructions for use with Fibromyalgia. If needed I can take one or two more over the day,five or six hours apart. I’d like to avoid that, hence the rotating Naproxen schedule and T3 phone alarm reminders.

Note: I wanted to write more but sleep was more important.

September 15th 2015-Supplement 

While my pain level is sitting at the 8/9 again my day went well. Caught all my buses on time and such. All the dogs got along. I’ve taken three T3’s, two 500mg Naproxen, anxiety meds, and one cyclobenzaprine today. The third T3 wasn’t what I would call necessary, mind you I am notorious for waiting too long to take meds. I took it so I could hopefully sleep well and get a leg up on my pain. I have my son coming to work with me tomorrow so I have the stroller to push around. Hoping it doesn’t rain until later tomorrow.