Interstitial Cystitis Flare – 08/07/2019

Content warnings: blood, intimate details of my nether regions, urine

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So.

Things have been epically stressful in my life since June 24th.

I thought I was taking enough care with what I was eating and drinking. After all, it’s been YEARS LITERALLY since my Interstitial Cystitis was any sort of issue. It’s been so long I had to look up relief methods.

The flare isn’t entirely unexpected, but it still caught me a bit off guard. Symptoms include high pain levels (ache/burn) in my nether regions and lower abdomen, bladder spasms, urgency, light bleeding.

I have medicating with CBD/THC, acetaminophen, naproxen, and cyclobenzaprine. Drinking lots of water. Avoiding all trigger foods.

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Check In – March 3, 2019

I am feeling very unwell today. The barometric pressure has been doing this rollercoaster thing for the majority of the winter. It’s been really rough. Particularly with having to recover from surgery.

The symptoms I’m having right now are the ones that really get to me. I’m used to pain and stiffness and having to gently push through it. These symptoms I can’t really alleviate the I can with pain and stiffness.

The list includes: dizzy, exhaustion, lethargy, light headed, unsteady on my feet, upright is hard. The longer I remain upright, the harder it is to do so. Shakes, swelling, feeling like I’m going to faint. Ugh.

Winter Bones

I made it nine days this time without Naproxen. Only took it for three days before my ankle calmed down, which was nice.

What wasn’t nice was the sudden plummeting temperatures. So the nine days has ended. It will be a couple more days I think before these pain levels drop.

I think I will take it daily again but take special care around my period in case I need to take the Cambria for the now regular migraine.

My doctor’s office has once again dropped the ball and have not called about the appointment I need with a neurologist.

Sigh.

High pain levels really do a number on my mental health.

Fast Broken

Well 7 days had been my original goal for my Naproxen/Rabeprazole fast and I made it. I’m happy about that. Not happy about my right ankle and foot flaring this badly, this suddenly.

3-5 days and hopefully foot will stop hurting and I can stop again.

Naproxen Fast

My stomach has been bothering me a lot lately. I tried cutting out coffee. Black tea was mildly problematic. The issue being coffee is the best at helping control my ADHD. Didn’t really help.

A few years back my Rheumatologist prescribed acid reducers to take with the Naproxen. It was the same visit she told me to stop taking them as needed and just take them daily. My Rheumy really isn’t big on medication so I take it pretty seriously when she tells me to take things daily.

I’ll be trying seven days without Naproxen. Then we’ll go from there. I’m working a bit less right now so it may work out well. My bloodwork is the best it’s been since before I started breeding. So maybe, just maybe, I can successfully cut back to “as needed” again.

Currently prescribed 500mg of Naproxen, twice a day.

My other reason for dropping it is because I’ve started getting migraines. They generally aren’t hideously painful but they last for days. I’m currently on day four of one right now. The migraine meds that actually work are a high level anti-inflammatory that I cannot take with my two doses of Naproxen due to risking toxicity.

Right now treating my uncontrolled migraines is more important than my very well controlled arthritis.

Wish me luck!

Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

Flare Tracker – 30•07•2018

Chronic pain info dump time!

Those red lines? Those are the paths my pain is following right now. It radiates out as well.

That dot? It feels like I’ve been impaled with a spear at that spot, and the spear is still there.

They tell me this is a fun combination of spinal compression, shitty connective tissue, and the nerve centre in my upper back being all fucked up. The “dot” is where a bunch of scar tissue hangs out from an work accident from years ago.

Meds so far today: Tylenol Arthritis, Naproxen, Cyclobenzaprine, CBD’s.

I have to work a full shift today too. Blarg.

#chronicillness #chronicpain #mylife #snapshot #nervepain #musclepain #jointpain #psoriaticarthritis #arthritis #undifferentiatedconnectivetissuedisease #fibromyalgia #oldwounds #scartissueisabitch #flaring