I am feeling very unwell today. The barometric pressure has been doing this rollercoaster thing for the majority of the winter. It’s been really rough. Particularly with having to recover from surgery.
The symptoms I’m having right now are the ones that really get to me. I’m used to pain and stiffness and having to gently push through it. These symptoms I can’t really alleviate the I can with pain and stiffness.
The list includes: dizzy, exhaustion, lethargy, light headed, unsteady on my feet, upright is hard. The longer I remain upright, the harder it is to do so. Shakes, swelling, feeling like I’m going to faint. Ugh.
Chronic pain info dump time!
Those red lines? Those are the paths my pain is following right now. It radiates out as well.
That dot? It feels like I’ve been impaled with a spear at that spot, and the spear is still there.
They tell me this is a fun combination of spinal compression, shitty connective tissue, and the nerve centre in my upper back being all fucked up. The “dot” is where a bunch of scar tissue hangs out from an work accident from years ago.
Meds so far today: Tylenol Arthritis, Naproxen, Cyclobenzaprine, CBD’s.
I have to work a full shift today too. Blarg.
#chronicillness #chronicpain #mylife #snapshot #nervepain #musclepain #jointpain #psoriaticarthritis #arthritis #undifferentiatedconnectivetissuedisease #fibromyalgia #oldwounds #scartissueisabitch #flaring
Ugh. That is the word of the day. It’s hot, we are having a heat wave this weekend. Highs in the 30C area, at night it’s about 15-20C. Wreaks havoc with my chronic illness. The kids had a rough week, the older is still having sleeping/eating/meltdown issues as well as teething (he lost his first tooth and the adult tooth replacing it is coming in fast), the younger is teething and growing so eating and waking a lot. My Mom brought me her old mobility scooter now that we’ve moved and have the space to store it, that’s been very helpful. It helped me get out to see her yesterday for her birthday. It’s now been a week since my surgery, healing is slow as I expected it to be (there’s a whole post in the works for that). I’m having issues getting up and down the stairs today. We got a good walk in though to loosen things up. There is a family gathering tonight that I completely forgot about that we aren’t going to. This has upset people greatly. I hate how taking care of myself leads to unhappiness and disappointment in others, let alone myself. I’m enjoying the time with my husband and kids today but I’m really unhappy about people being unhappy with me for taking care of myself. Well they aren’t unhappy with me personally, at least I hope not. Just sad about the situation. Thing is this same person gives me crap for not getting enough rest and self care and whatnot. Just feels like I can’t make anyone happy, least of all myself.
I’m seriously considering medication for depression again. Probably Wellbutrin since it will help with the smoking. I also need something for my Fibromyalgia, and need to discuss my worsening joint pain and such. My rheumatologist moved my May appointment to August. It will be almost a year between appointments. I am not pleased with my current quality of care. I can’t even find a family doctor close to my new home, I don’t think finding a new rheumatologist is going to be any easier. I need a vacation from life or something.
Overall Pain Level: 9
I’m 11 weeks pregnant, my neck and the nerves in my upper back are starting to act up again. My nausea is a combination of pregnancy and high pain levels. I wasn’t feeling too bad for most of the day, just tired. Then a storm rolled in around 4:30pm and I crashed hard. I feel fucking awful. Ugh. I’ve taken Tylenol Arthritis and have a heating bag on my neck right now. It’s taking the edge off at least. I need to call my GP tomorrow and find out why I don’t have an OB appointment yet. I’m assuming they have forgotten again just like they forgot to schedule my early ultrasound. I miss my old GP.
Almost every person I have talked to that has a chronic and/or autoimmune disorder share the experience of their condition changing with the weather. A lot of this has to do with barometric pressure. I even started taking solar flares into account. I have tried to track pressures and my condition before and just couldn’t keep up with it. I’m going to note it when I do remember but I’m not going to stress about it.
All this week the weather has been fluctuating rather drastically. A good ten degree difference from day to day. A five to ten degree difference just over night. There is possibility of rain and thunderstorms as the warm and cold intermingle.
My joints feel like they are filled with fine sand or ground glass. Sometimes it feels like what I imagine slow moving chainsaws would. The muscle/nerve pain associated with my Fibromyalgia is difficult to predict. Well all the symptoms really. Recurrent low level nausea multiple times a day right now.
Current weather report…
Saturday, May 16, 2015, 18:45 PDT
- Feels Like: 17
- Wind: SE 6 km/h
- Sunrise: 5:28
- Sunset: 20:50
- Humidity: 66%
- Pressure: 101.5 kPa