Gods I forgot what a major emotional episode does to my body. I feel like I’ve been hit by a truck. Ugh.
I’m going to be breaking up my posts like this for the near future. Writing out one daily post is apparently very daunting for my brain so in an effort to post more regularly, I am trying this. Kinda like bullet journaling.
Arthritis isn’t too bad. I thank Plaquenil (Hydroxychloroquine) for that. I started back on a month before my daughter was born, it was supposed to be two months but she decided to show up a month early. I had a second c-section which did nothing good for the pain in my hips. Severe pain at least once a week. Moderate to heavy pain three to four days a week, mild to moderate pain daily. Occasion instances of the pain shooting down to include my knee. Some ligament related pain in lower abdominal area. I can move around for about fifteen minutes before the “ground up glass” feeling starts in my hip. It generally the right, occasionally the left or both hurt, more often then not it is the right side. This effects my sleep and mobility. Right ankle and foot flaring up about once a month. Some swelling in hands. Having real trouble twisting things with my right hand (door handles, water taps, bottle caps, jars, etc). Walking up and down the stairs is quite painful. My jaw has been very painful at times ane very sensitive to stress and petetative mivemwnts. Hips and jaw are the main complaints with arthritis.
A new year and my usual “resolution” to write more often. We’ll see how it goes this this time.
I’m trying to be more accurate with my pain scale. 1 being negligible pain and 10 being bed ridden. Well as bed ridden as I can be with two kids. My daughter decided to show up four weeks early on November 25th, 2016. Outside of some issues regulating her blood sugar in the first 24 hours and 4 day stay in the hospital for jaundice treatment she is good and healthy. She was 6lbs 7oz, only 8oz lighter then her brother but seems so much smaller. Breast feeding is going really well, WAY better then it went with my son, which is doing my mental state some good. We’ve had A LOT of out of the ordinary weather, a lot of arctic outflow reaching is and giving us a good amount of snow. We did our best not to overdo it with visits over the holidays and are trying not to overdo the newborn visits as well. Folks can come here if they want to see her. I’ve been feeling really awful the last few days, my pain levels are down at least. It’s a combination of a lot of factors, taking care of a newborn and a four year old adjusting to a newborn, holiday stress (positive and negative stress), weather patterns, eating a whole bunch of crunchy food that seriously pissed off my jaw(arthritis and TMJ). I’m utterly exhausted, easily irritated. My body has a “pain pulse”, pain pulses through my joints and muscles like a heart beat. My reproductive psychiatrist is confident I am not showing signs of Post Partem Depression but we need to make sure I’m okay. She reccomends better self care, counseling, and if needed I can bump my Paxil up from 40mg a day to 50mg. I’m seriously considering bumping it up today. I’m doing a bit better with self care. We have dinner at my parents later, which as much as I don’t want to leave the house it will be nice to see them and not have to make dinner. There will also be presents which is fun. I’m hoping my feeling awful isn’t the start of the post pregnancy flare up. I was hoping that awfulness would wait until the three month mark like it did with my son. I’m hoping to do some posts this year that aren’t just my daily log. We’ll see what I can come up with.
So money is tight, I need new compression gloves and braces for my thumbs. I don’t have the approximately $200 I need for them so I bought a $6 roll of sports tape to try out. Works pretty good! Particularly for work where I still need some mobility. I’ve been warned the sticky stuff will irritate my skin over time but it works for now. Here’s my hands today. Below that are some pictures from last week.
Overall Pain Level: 9
I’m 11 weeks pregnant, my neck and the nerves in my upper back are starting to act up again. My nausea is a combination of pregnancy and high pain levels. I wasn’t feeling too bad for most of the day, just tired. Then a storm rolled in around 4:30pm and I crashed hard. I feel fucking awful. Ugh. I’ve taken Tylenol Arthritis and have a heating bag on my neck right now. It’s taking the edge off at least. I need to call my GP tomorrow and find out why I don’t have an OB appointment yet. I’m assuming they have forgotten again just like they forgot to schedule my early ultrasound. I miss my old GP.
Arthritis Pain: 5
Fibromyalgia Pain: 7-8
My body is angry. My brain is very tired. I have come down with the virus/plague/whatever is going around here. My spouse with his iron clad immune system is still fighting it after four weeks. I’m going to be sick until freaking Summer. I just want to sleep but I have to go to work. I was considering a new line of work but both my Rheumatologist and Psychiatrist both recommend me staying in this current job. It supplies “free” exercise and animal therapy as well as keeping me active. I may need to take a day off later this week. Arthritis isn’t too bad these days, my FM is kicking my ass though. VERY achy and stiff, a lot of brain fog. Anxiety is definitely better than it was.
Fibro Pain: 8-9
Arthritis Pain: 5-6
Joints were only mildly cranky, mostly due to work. Fibro pain was bad today. A few light headed moments. Had a late walk and missed my bus, watched it drive by as I was painfully trying to book it up the stairs. I just about burst into tears. When I got up the last flight my wonderful hubby and the child were waiting for me to drive me home. SO happy to see them. My mid-spine is quite painful today. I’ve never been sure if that pain is FM or PA related. I discovered this evening that I have lost the ability to use a mortar and pestle. I know I can pick up an electric grinder for like $10 but it’s not about the ease of which I can replace using my hands; It’s about the fact it’s one more thing I’ve lost the ability to do with my hands. I am displeased but too tired and worn out to really get bent out of shape about it. I’m VERY slowly putting together a batch of banana-carrot-zucchini muffins, and by slowly I mean I started an hour ago. *silly face* They will be good when they are finally done. Hanging out with my son is great. I don’t get to see him nearly enough right now. Last week I did routine blood tests ordered by my rheumatologist. I think they are just to make sure all my organs are happy since I am generally on medication at all times. I’m supposed to get them done every six months but I haven’t gotten them done in about a year. My GP’s office called today to come in and talk about it, so I go do that tomorrow. I don’t think there is actually anything to worry about. My rheumatologist put me back on Plaquenil after I stopped it on the advice of my GP about 9 months ago. Said in my case it is more stressful on my body and worse for conception/pregnancy to be off than on. There have been rare cases of children born with some hearing loss. I’m back on it though and very happy about it. A few more weeks and I’ll start to feel some real difference in pain levels. New studies have also pointed to anti-inflammatories causing issues with egg implantation, rheumatoloist said it’s not anything to worry about with folks who get pregnant easily but since I do have issues with that we have taken off of any anti-inflammatory drugs.
I think that’s all the new info.