A new year and my usual “resolution” to write more often. We’ll see how it goes this this time.
I’m trying to be more accurate with my pain scale. 1 being negligible pain and 10 being bed ridden. Well as bed ridden as I can be with two kids. My daughter decided to show up four weeks early on November 25th, 2016. Outside of some issues regulating her blood sugar in the first 24 hours and 4 day stay in the hospital for jaundice treatment she is good and healthy. She was 6lbs 7oz, only 8oz lighter then her brother but seems so much smaller. Breast feeding is going really well, WAY better then it went with my son, which is doing my mental state some good. We’ve had A LOT of out of the ordinary weather, a lot of arctic outflow reaching is and giving us a good amount of snow. We did our best not to overdo it with visits over the holidays and are trying not to overdo the newborn visits as well. Folks can come here if they want to see her. I’ve been feeling really awful the last few days, my pain levels are down at least. It’s a combination of a lot of factors, taking care of a newborn and a four year old adjusting to a newborn, holiday stress (positive and negative stress), weather patterns, eating a whole bunch of crunchy food that seriously pissed off my jaw(arthritis and TMJ). I’m utterly exhausted, easily irritated. My body has a “pain pulse”, pain pulses through my joints and muscles like a heart beat. My reproductive psychiatrist is confident I am not showing signs of Post Partem Depression but we need to make sure I’m okay. She reccomends better self care, counseling, and if needed I can bump my Paxil up from 40mg a day to 50mg. I’m seriously considering bumping it up today. I’m doing a bit better with self care. We have dinner at my parents later, which as much as I don’t want to leave the house it will be nice to see them and not have to make dinner. There will also be presents which is fun. I’m hoping my feeling awful isn’t the start of the post pregnancy flare up. I was hoping that awfulness would wait until the three month mark like it did with my son. I’m hoping to do some posts this year that aren’t just my daily log. We’ll see what I can come up with.
So money is tight, I need new compression gloves and braces for my thumbs. I don’t have the approximately $200 I need for them so I bought a $6 roll of sports tape to try out. Works pretty good! Particularly for work where I still need some mobility. I’ve been warned the sticky stuff will irritate my skin over time but it works for now. Here’s my hands today. Below that are some pictures from last week.
Overall Pain Level: 9
I’m 11 weeks pregnant, my neck and the nerves in my upper back are starting to act up again. My nausea is a combination of pregnancy and high pain levels. I wasn’t feeling too bad for most of the day, just tired. Then a storm rolled in around 4:30pm and I crashed hard. I feel fucking awful. Ugh. I’ve taken Tylenol Arthritis and have a heating bag on my neck right now. It’s taking the edge off at least. I need to call my GP tomorrow and find out why I don’t have an OB appointment yet. I’m assuming they have forgotten again just like they forgot to schedule my early ultrasound. I miss my old GP.
Did not eat gluten all day, I was tired from work but not in too much pain. Had a burger and fries for dinner. The bun was a regular white hamburger bun, the fries have some sort of coating. Within two hours I developed moderate to severe joint pain, itchy skin, some sneezing.
So I shared this meme today on my Facebook page. An acquaintance asked why do it then, as in why hate my body. I answered that I can’t help it sometimes. I’ve waxed all philosophical about it and decided I needed to write an actual blog post about it. As the title alludes to, there is a lot of fear and loathing involved in my relationship with my body. It’s never been an overly healthy thing. That’s the toss up for hopping out of the womb three months early and surviving, I guess. I caught pneumonia for the first time at one week old. For all the sickness I had as a child, none of it was a disability. My body generally worked, my immune system was just crappy. I think I was seven or eight the first time my knees started to ache. Younger for the first angry colon/bladder incidents. It still wasn’t until I was thirteen or fourteen where things really started to fall apart. I remember trying out for track and field at my new elementary school, having just moved to Surrey. As I sprinted across the field, fully expecting my legs to piston as always regardless of pain, the first real fear moment struck. It didn’t hurt a lot, my knee just refused to take my weight, and into the gravel I went. It would take a few years of debilitating knee pain for the loathing to start. When your body hurts every day, for no particular reason, you eventually start feeling pissy with it. This acquaintance, like a lot of people who don’t live with chronic pain, says I always have a choice in how I view my body. In reality, I really don’t. Chronic illness and pain do a number on the brain chemistry. So while sometimes I can pull myself out of the more, a lot of the time I can’t.
I’ve been feeling awful, as my lack of posts usually indicates. I’m still feeling awful but answering a concerned email from a dear friend reminded me how therapeutic writing is. So I’m pretty much forcing myself to write this.
Spring is here, officially and otherwise, which means all sorts of pain for me. The fluctuating barometer and temperature means very stiff and painful joints. The pollen levels are also epic, ’tis the season of allergy meds and ventolin. I love this season but my body does not. Hands, forearms, elbows, shoulders, spine, hips, and right foot are all bad. Fibro is still flaring it’s ugly head. The stress is high.
Anxiety is running hot and hard, and in none of the good ways that can be thought up. Went from twenty to fourty mg’s of Paxil. Been smoking a lot of cigarettes which really does not help anything but old habits die hard when not well. Taking that one moment at a time right now. I’ve also been gorging on junkfood but not doing so well in the proper food department. Not drinking nearly enough water either. Note to self and all. I want to go mostly gluten free again and more vegetarian fare. Will be working on this.
I am bone tired. I want to go to the beach. I want to go camping.
Signing off for now.
Arthritis Pain: 5
Fibromyalgia Pain: 7-8
My body is angry. My brain is very tired. I have come down with the virus/plague/whatever is going around here. My spouse with his iron clad immune system is still fighting it after four weeks. I’m going to be sick until freaking Summer. I just want to sleep but I have to go to work. I was considering a new line of work but both my Rheumatologist and Psychiatrist both recommend me staying in this current job. It supplies “free” exercise and animal therapy as well as keeping me active. I may need to take a day off later this week. Arthritis isn’t too bad these days, my FM is kicking my ass though. VERY achy and stiff, a lot of brain fog. Anxiety is definitely better than it was.