Winter Bones

I made it nine days this time without Naproxen. Only took it for three days before my ankle calmed down, which was nice.

What wasn’t nice was the sudden plummeting temperatures. So the nine days has ended. It will be a couple more days I think before these pain levels drop.

I think I will take it daily again but take special care around my period in case I need to take the Cambria for the now regular migraine.

My doctor’s office has once again dropped the ball and have not called about the appointment I need with a neurologist.

Sigh.

High pain levels really do a number on my mental health.

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Fast Broken

Well 7 days had been my original goal for my Naproxen/Rabeprazole fast and I made it. I’m happy about that. Not happy about my right ankle and foot flaring this badly, this suddenly.

3-5 days and hopefully foot will stop hurting and I can stop again.

Naproxen Fast

My stomach has been bothering me a lot lately. I tried cutting out coffee. Black tea was mildly problematic. The issue being coffee is the best at helping control my ADHD. Didn’t really help.

A few years back my Rheumatologist prescribed acid reducers to take with the Naproxen. It was the same visit she told me to stop taking them as needed and just take them daily. My Rheumy really isn’t big on medication so I take it pretty seriously when she tells me to take things daily.

I’ll be trying seven days without Naproxen. Then we’ll go from there. I’m working a bit less right now so it may work out well. My bloodwork is the best it’s been since before I started breeding. So maybe, just maybe, I can successfully cut back to “as needed” again.

Currently prescribed 500mg of Naproxen, twice a day.

My other reason for dropping it is because I’ve started getting migraines. They generally aren’t hideously painful but they last for days. I’m currently on day four of one right now. The migraine meds that actually work are a high level anti-inflammatory that I cannot take with my two doses of Naproxen due to risking toxicity.

Right now treating my uncontrolled migraines is more important than my very well controlled arthritis.

Wish me luck!

Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

Flare Tracker – 30•07•2018

Chronic pain info dump time!

Those red lines? Those are the paths my pain is following right now. It radiates out as well.

That dot? It feels like I’ve been impaled with a spear at that spot, and the spear is still there.

They tell me this is a fun combination of spinal compression, shitty connective tissue, and the nerve centre in my upper back being all fucked up. The “dot” is where a bunch of scar tissue hangs out from an work accident from years ago.

Meds so far today: Tylenol Arthritis, Naproxen, Cyclobenzaprine, CBD’s.

I have to work a full shift today too. Blarg.

#chronicillness #chronicpain #mylife #snapshot #nervepain #musclepain #jointpain #psoriaticarthritis #arthritis #undifferentiatedconnectivetissuedisease #fibromyalgia #oldwounds #scartissueisabitch #flaring

Heat Wave and Disappointments

Ugh. That is the word of the day. It’s hot, we are having a heat wave this weekend. Highs in the 30C area, at night it’s about 15-20C. Wreaks havoc with my chronic illness. The kids had a rough week, the older is still having sleeping/eating/meltdown issues as well as teething (he lost his first tooth and the adult tooth replacing it is coming in fast), the younger is teething and growing so eating and waking a lot. My Mom brought me her old mobility scooter now that we’ve moved and have the space to store it, that’s been very helpful. It helped me get out to see her yesterday for her birthday. It’s now been a week since my surgery, healing is slow as I expected it to be (there’s a whole post in the works for that). I’m having issues getting up and down the stairs today. We got a good walk in though to loosen things up. There is a family gathering tonight that I completely forgot about that we aren’t going to. This has upset people greatly. I hate how taking care of myself leads to unhappiness and disappointment in others, let alone myself. I’m enjoying the time with my husband and kids today but I’m really unhappy about people being unhappy with me for taking care of myself. Well they aren’t unhappy with me personally, at least I hope not. Just sad about the situation. Thing is this same person gives me crap for not getting enough rest and self care and whatnot. Just feels like I can’t make anyone happy, least of all myself.
I’m seriously considering medication for depression again. Probably Wellbutrin since it will help with the smoking. I also need something for my Fibromyalgia, and need to discuss my worsening joint pain and such. My rheumatologist moved my May appointment to August. It will be almost a year between appointments. I am not pleased with my current quality of care. I can’t even find a family doctor close to my new home, I don’t think finding a new rheumatologist is going to be any easier. I need a vacation from life or something. 

General Update – June 11th, 2017

Gods my joints hurt so much, particularly my legs. I fell on Wednesday last week, full face plant onto the sidewalk, with the added fun of my six month old rolling into traffic in her stroller. 

Good times. *sarcasm*

I had a scraped knee and a sore ankle, things have been hurting more as the days go along. Shoulders are bad, as are hips. Ankle and knees are now acting up, particularly on the right sides (the knee that hit the ground first when I fell). My spine has also been really painful.

Yesterday I pushed the patio door closed and managed to mess up my left hand. Spouse says it sounds like a work injury he’s had a few times. Seems to be nerve related. My whole left arm hurts though when it gets going.

The weather is shifty as well which never helps.

Uhm. What else. In the last four weeks we have painted, packed, moved, cleaned two different places, and mostly unpacked into our new place. Had my sons fifth birthday two weeks after we moved in. 

Oh and I’m smoking 5-10 cigarettes a day currently.

Madness I tell you.