March 10th, 2012

*sighs*

This is why my house gets so messy. Cleaned yesterday. Not a crazy cleaning binge or anything but made it somewhat presentable. Made apple crisp then my back crapped out on me. Woke up this morning with claws for hands. As the day has gone along pain levels are ramping up. Everything from the shoulder blades up. If I do too much with my hands for any length of time it feels like someone is ripping out the tendons in my wrists. Can’t lift my arms above my head. Feeling nauseated. Overall it’s really rough going today. Was going to participate in a Garage Sale today to get some advertising done, promote the cake smash with Gemini Visuals, and sell some goodies. It’s not happening. I can barely move for any length of time. I am not pleased.

 

Meds/Pain Management: 1 ES Tylenol, neck stretches, taking it easy, 1 Wellbutrin

Supplements: 1 Vit D, 1 Folic Acid

Pain Level: 8.5 – 9

Mood: 6

Advertisements

March 2nd, 2012

Been really sore the last few days. The cold and wet weather isn’t making things enjoyable. Hands are red and swollen when I wake up. The “T-Zone” pain is returning to it’s usual levels. Physio told me to come back if it got bad again. I suppose I should give them a call. It just seems wasteful to spend $50 for 20min or so of light traction on my neck. Wrists are tender and sore, pain up to the middle of my forearms. Ankles are sore. A few days ago after sitting on the couch for a bit I got up and it felt like I had sprained my right ankle. Been coming and going ever since. Hips get sore unless I sit with my legs up so this recliner in my couch is coming in handy. Third trimester sleepys are kicking in. Baby kicks up a storm a good portion of the time. My belly jiggles now when it kicks. The hubby finally felt it the other day. He was super happy. Crochet work on the little teddy bear I am making for my niece is being put off until warmer weather returns, fingers can’t handle all the  small stitches. So I’ve started a blanket for baby with this pretty white and grey yarn. It’s a zig-zag stitch, which is new for me but it’s fun.

Update
Was mildly productive. Checked my EI status, ROE still not there. Took to maintenance fee to the office. Finally found the mail key after looking for half the day so I got into the mail. My yarn order is not here yet. Spent most of the day being a vegetable. Head has been pounding all day along with the T-zone. Time for bed.

Meds/Pain Management: 2 Wellbutrin, 2 ES Tylenol, 15mg Cipralex, neck stretches

Supplements: 1 Vit D, 1 Folic Acid, 1 Prenatal Vit

Pain: 8

Mood: 7

February 23rd, 2012

I apologize for the overly long delay. I’ve been tired and sore and quite busy again.

Major Medical Updates:

~Went to see an allergist to confirm my latex sensitivity. Still just contact dermatitis, no actual latex allergy. Still have the severe dust allergy.
~Saw a psychologist to asses my mental condition/illness. The preliminary diagnosis, which she’s pretty much certain on but doesn’t want to say for sure until she’s seen me one more time, is Generalized Anxiety Disorder and Panic Disorder. My Depression is situational, or “secondary” as they like to say in Chronic Pain articles. It springs from circumstances rather than any underlying chemical imbalance. Says that everything seems well controlled, which I agree, and that her main recommendation is good self care. I will see her again in May. The extra fun part is she works with my counselor at St. Paul’s Hospital. I haven’t been able to see my counselor for months because I stopped working, just can’t afford it. The psychologist is going to transfer my files to St. Paul’s so I can see my counselor for free until the baby is a year old. There are also a lot of free resources I can get at the Hospital which is also good.

~Baby seems fine. Moving around like a crazy person. I go for my diabetes test in two weeks. Only thing that is out of the ordinary so far is that I “measured large” for how far along I am. In four weeks when I go back he will check again and if I am still big they will send me for an ultrasound. It could just be a big baby, which is my theory. There is also the possibility of extra fluid in the womb which can just happen sometimes or can be caused by GD. Having a giant baby can also be caused by GD. Like I said, I don’t think I have either, I think it’s just big. Both my family and my husbands family make big babies.

~Now for the ranty bit. My baby doctor got my files from my Rheumatologist accompanied by a note. The files state I definitely have Fibromyalgia and not Rheumatoid Arthritis. Which is good, even though I don’t quite trust it because the Rheumy is an asshat. He told my Mom she needed to lose weight, that’s why her back was hurting so much. She demanded an MRI and he refused, so she had our GP send her to a back specialist who sent her for one. Turns out she has spinal stinosis and just went for surgery a few months ago. If he is definitely right and I don’t have RA that’s great, I don’t actually want it obviously. Doesn’t explain why my GP still mentions my RA when I am there and when he wrote me off for my sick leave he wrote a flare in FM AND RA as the reason. The note mentions that the Rheumy was “under the impression” that I was already taking Plaquenil. Which I totally wasn’t. When I saw him last a year ago he told me to get more exercise, that there was nothing he could do for me and to not come back. So now I feel like my Baby Doctor thinks I’m a crazy person. I’m SO SICK AND TIRED of just being brushed off. I just want some straight answers. Is that too much to ask? As far as the Plaquenil goes, turns out that I WAS taking it…almost two years ago…which wasn’t helping, so the Rheumy TOLD me to stop taking it. Now the fact that it didn’t help lends more weight to the “only” FM diagnosis. But how can he not remember what he prescribed me and what he told me to stop taking?? And this doesn’t explain why Celebrex works to a certain degree. If it’s NOT an inflammatory condition how does a major anti-inflammatory help? Unless FM IS a inflammatory condition…I can’t remember right now. Anyways, I’m stuck with my current pain levels. Since the RA diagnosis was “negative” the Baby Doctor did not offer prednisone like he said he might. Which on one hand is good since I don’t want to take steroids when pregnant. But I was really hoping I could get some relief. I’m not going to remove myself from the arthritis groups I am part of, regardless of diagnosis I know people with the disease so I can still show my support. I will stop tagging with “arthritis” and “rheumatoid arthritis” for now though.

 

As far as the last week or so has gone, I’ve been pretty up and down, following the weather as usual. Last two days weren’t too bad because of the sun. The three or four days before that were really bad because it was rainy and cold. Had to bring out the cane again. I’m going to do my best to report every day again, even if it is just pain levels and location. My “nesting instinct” is pretty hard core right now. On days where I feel decent I’ve been cleaning like crazy. My hips and lower back have been pretty stiff and sore but I figure that has a lot to do with the baby. I’m developing a pretty nasty head ache right now. We will see what tomorrow brings. Hopefully I will be feeling less cranky.

Pain: 6.5-7

Pain Management/Meds: stretching, short walk/1 Wellbutrin

Supplements: 1 Vit D, 1 Folic Acid

Mood: 5-7

February 7th, 2012

Busy day. Could barely get out of bed but did eventually, had to go out with my MIL to find fabric for the window dressing she’s making for the babys room. Found this cute pattern with owls on it in different colours. Then we went for lunch and I stopped at the mall to pick up oranges among a few other things. Walked home. It was gorgeous, just wearing my chords and a t-shirt, didn’t need my sweater. Was completely beat by the time I got home. Rested for a bit. My head was pounding at this point, light and sound sensitivity, nausea. For the first time in almost six months I’m actually stiff. Mid-back particularly painful. Managed to get some dinner together which helped quite a bit with the headache. Then threw some laundry in the wash. I’m sitting on the couch,writing this entry on my phone now, lights low, waiting for one load to come out of the dryer so I can toss the other load in and then I’m crashing. I have physio tomorow but besides that I don’t plan on doing anything. Maybe some document shredding. I can do that from the couch.

Pain Management/Meds: 1 ES Tylenol(I don’t think I’ll sleep without it), 2 Wellbutrin, 15mg Cipralex, stretching, walking

Supplements: 1 folic acid, 1 vit d, 1 prenatal vit, (Omega 3’s are giving me crazy heartburn so I’ve stopped for now)

Pain: 6-9 (weird, I know)

Mood: 7

February 6th, 2012

Sleep has been elusive. I’ve been waking up every few hours. We went out to see good friends of ours for the Superbowl. The hubs and his buddy watched the game. Myself and his wife sat and shared war stories about FM and chronic illness. Was fun but by the end of the night my whole back and neck had seized up, my head felt like it was in a vice and any light source made me want to vomit. So when we got home we organized the budget because it helps both of us relax a wee bit…well only in the sense that we have a plan at least. And then the hubby said to sleep, so I did.

The first three hours was the coma-like sleep that accompanies high pain levels. I’ve been waking up every two to three hours since. Usually a combination of neck and hip attacking me. Hubby seems to be waking up with me more often which I figure is why he seems to “get it” more then he used to. It’s also helpful because he calms me down when I almost freak out because all I want is some sleep.

Keep having nightmares about having to go back to work, always as a cook. Some part of the kitchen always starts to smolder and then catch on fire but no one seems to care. So I leave. They suck either way.

I’m typeing this on my phone…the laptop is too far away…and my fingers hurt. Here’s to hoping I can get back to sleep. Might be difficult with Miss Kitty trying to burrow into my neck. She’s just so damn cute…and so infuriating all at the same time. I do love her so.

Oh yeah…I stopped taking ES Tylenol on Saturday. One at a time wasn’t cutting it for anything anymore. And then two doses of two wasn’t working. I swear it makes the baby sluggish. I also talked to an Aunt who almost had liver failure in the last few months because of long term Tylenol use. So yeah. It’s off the menu.

Hopefully I will remember to update later.

Pain: 9

Mood: 4

February 4th, 2012

Just a quick update before we run out for the evening. I will update about yesterday ASAP as well.

Felt relatively well today, all things considered. Not too sore but exhausted. I slept a good portion of the day. Looked at the sunshine, never did convince myself to go out in it. Still tired and now that I am up and moving my back hurts. Oh well.

Pain Management/Meds: 2 Wellbutrin, sleep, blankets…did I mention sleep…possibly some Tylenol…I can’t remember.

Supplements: 1 vit D, 1 folic acid

Pain: 6.5…but creeping up.

Mood:8

February 3rd, 2012

Woke up at 3am. I tried to not get out of bed for as long as possible but my bladder was about to explode. I swear the Bun jumps on it around 3am every day. Once I was awake I couldn’t get back to sleep. Throbbing was starting in the t-zone again. My arms from the fingertips up to the shoulder blades are tired and achy and sore. They have their own pulse now. This has become a normal daily thing. It’s making me cranky. Mr. Cat is lucky I haven’t strangled him yet this morning. I am also famished and I want a cup of my cheap ass mocha (instant coffee, hot chocolate mix, milk, voila!). The kitchen is all the way over there though and I’m tired and sore and don’t want to move. Going to the bathroom and taking meds was annoying enough. I’ll let the heating pad work some of it’s magic for a bit longer and then get up. Of course I feel like this on a day where I have things to do. I am going to the pool with my SIL, Mom, a good friend with her baby, and the niece and nephew. I’m not really a swimmer…more of a wader…like a hippo. And you won’t catch me dead in a bathing suit anymore…shorts and a t-shirt work just fine. After that the plan is to go to TJ Kiddies which is this baby/kid store that has the most awesome things. The unfortunate thing is that most of it is way out of my price range. Still fun to go look though. I’m undecided as to whether or not the exercises from the physio are helping or not. The small neck stretches do help a bit but the strengthening exercises for my shoulder blade area I’m beginning to think are actually making things worse. I managed to get them done as instructed, one set of ten for both exercises, twice a day, for a few days earlier in the week. After those few days I felt like I had been hit by a truck. So I stopped altogether for a day. Only did them once a day the next two days. I’ll try twice today and see what happens.

As far as the Bun goes, she seems like a happy little camper. Wiggling around in there a whole bunch. On days like yesterday where I was up and walking around (light housework, feeding myself and the hubby) I don’t feel nearly as much movement, which always makes me paranoid. When I spend the majority of the day laying down it’s like she’s having a party in there. She was 13 oz. at the 20 week ultrasound, which is apparently 3 oz. heavier then the average at that stage. I wonder how much they grow in two weeks? The stretch marks are starting, different colours even! There’s little red ones and silver ones! Hehe! I suppose it’s just a testament to my personality that I am thoroughly entertained by this. I’m becoming a milk factory already. Luckily this only happens in the shower, no leaking in public as of yet.

I’m going to have a snack. I think the heating pad is going to put me back to sleep again, one of the things I love about it. Will do my best to remember to update later.

Pain Management: 2 XS Tylenol, neck stretches x 1, shoulder/upper back exercises x 1, heating pad, 1 Wellbutrin

Supplements: 1 folic acid, 1 vit D

Pain: 8

Mood: 6