June 1st, 2016

Overall Pain Level: 9

I’m 11 weeks pregnant, my neck and the nerves in my upper back are starting to act up again. My nausea is a combination of pregnancy and high pain levels. I wasn’t feeling too bad for most of the day, just tired. Then a storm rolled in around 4:30pm and I crashed hard. I feel fucking awful. Ugh. I’ve taken Tylenol Arthritis and have a heating bag on my neck right now. It’s taking the edge off at least. I need to call my GP tomorrow and find out why I don’t have an OB appointment yet. I’m assuming they have forgotten again just like they forgot to schedule my early ultrasound. I miss my old GP.
*sighs*

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1 February 2016

Fibro Pain: 8-9
Arthritis Pain: 5-6

Joints were only mildly cranky, mostly due to work. Fibro pain was bad today. A few light headed moments. Had a late walk and missed my bus, watched it drive by as I was painfully trying to book it up the stairs. I just about burst into tears. When I got up the last flight my wonderful hubby and the child were waiting for me to drive me home. SO happy to see them. My mid-spine is quite painful today. I’ve never been sure if that pain is FM or PA related. I discovered this evening that I have lost the ability to use a mortar and pestle. I know I can pick up an electric grinder for like $10 but it’s not about the ease of which I can replace using my hands; It’s about the fact it’s one more thing I’ve lost the ability to do with my hands. I am displeased but too tired and worn out to really get bent out of shape about it. I’m VERY slowly putting together a batch of banana-carrot-zucchini muffins, and by slowly I mean I started an hour ago. *silly face* They will be good when they are finally done. Hanging out with my son is great. I don’t get to see him nearly enough right now. Last week I did routine blood tests ordered by my rheumatologist. I think they are just to make sure all my organs are happy since I am generally on medication at all times. I’m supposed to get them done every six months but I haven’t gotten them done in about a year. My GP’s office called today to come in and talk about it, so I go do that tomorrow. I don’t think there is actually anything to worry about. My rheumatologist put me back on Plaquenil after I stopped it on the advice of my GP about 9 months ago. Said in my case it is more stressful on my body and worse for conception/pregnancy to be off than on. There have been rare cases of children born with some hearing loss. I’m back on it though and very happy about it. A few more weeks and I’ll start to feel some real difference in pain levels. New studies have also pointed to anti-inflammatories causing issues with egg implantation, rheumatoloist said it’s not anything to worry about with folks who get pregnant easily but since I do have issues with that we have taken off of any anti-inflammatory drugs.

I think that’s all the new info.

Supplements 

I’ve been falling dreadfully behind on taking my supplements. After many months of not taking anything outside of prescribed medication, I had been trying to get back into the habit of it. It’s of particular importance now that I am off ALL medication outside of daily Tylenol 3’s and Cyclobenzaprine.

The List

  • Multivitamin; women’s maternity variety for the extra folic acid and because we are trying for another child.
  • Calcium
  • Fish Oil
  • Probiotic 
  • Antioxidant(it’s not a regular supplement, it came with some of the others)
  • Magnesium
  • Turmeric and Curcumin

The turmeric combo I just bought today, so it may be some time before I notice anything.

Uncertainties

Once again it is time for a round of “What the fuck do I do?”.

I really do love my job. The time with the dogs is awesome and therapeutic, the walking is good to a certain degree but I WAY overdo it pretty much every day. I worry about joint damage now that I’ve been off my arthritis medication for so long. I can dope myself up to high heaven to get through the day if I need too get through the pain but it doesn’t stop damage. Living in a country with public medical care is fantastic, I’m frustrated though that because I missed my last appointment with my Rheumatologist in August that I have to wait until February to see her again. There’s questions I’d like to ask about pregnancy, let alone how to keep my joints safe while I am off my medication.

Remember the allergic reaction I had the other day? Well I had another reaction the next day while at work. Those two days I was working at the doggie daycare side of the business not just walking. I have a mild dog allergy that I really had never noticed before, I have been around or had dogs in the house my whole life. Apparently when you stuff a bunch of them in a building though and then have me sweep up the hair, THEN it becomes a problem, which makes sense. The hair and dander would probably make anyone react. It’s not even that it’s filthy or anything, it’s VERY clean but enclose everything and yeah. Issues. Good thing is now that I am not taking Lyrica or Plaquenil I can tale allergy medication without going into a drug induced coma. Not sure how that will work when I get pregnant.

I could very easily get a retail type job and make more money with considerably less work. I would lose A LOT of things though. With my current job I can stop and go as I need too. If I am feeling extra gross I can stay in the backyard with the dog or take it to the nearest dog park and they can run about. When the weather is the shits I only have to take them out to pee/poop and then we go inside to play. I can take my son with me to pretty much any walk if I need too. When I worked four hours at the daycare on the weekend he got to come with me and spend the whole time with me and play with the pups. This is not even touching on the fact it is a tiny local business that I work for.

*sigh*

Okay I feel a little better after dumping all this on the page. Thanks for listening folks.

May 20, 2015

Sometimes the pain and exhaustion feels like a suffocating wave. I held it together for the day while I was out. My right side has been causing more pain then the left. Still hurts on the left but it is rarely debilitating. I knew after the first block or so of walking that it was going to be really painful later on. I did my best to take it easy. As soon as I lay down on my bed when I got home it started in my hip, then the ankle, now the knee and a twinge coming on in the shoulder. The pain has a life of it’s own when it gets this bad. It has a pulse. A personality. You find yourself bargaining with it. I’m scared because now that I’m finished my arthritis meds everything is going to get worse and worse. Until I get pregnant anyways, and that’s if I go into remission this time. We need to hurry up and move and get the tenant in so more cash starts flowing so I can stop working.

May 1st, 2012

First off wishing a Blessed Beltaine to all!

Secondly, yes I am alive and relatively well.

I’ve been up since 1 a.m. so if I seem a little random that’s why. Sleep has become elusive. I’m exhausted. Unbelievably so at times. But I’m averaging about four hours a night at the moment. I’ve also started waking up in the middle of the night again. Every few days though I will sleep for like 8-10 hours. When I am awake I do try to be constructive, like writing and such, but it just seems so hard. My brain is all foggy. It’s like Fibro Fog on steroids. I have managed to get the baby’s room essentially set up with the help of Rob, Ashley, and my Mum. It’s just a matter of going through a few more boxes of crap that I moved to the bedroom. My nesting instinct turned into nesting PANIC, hehe.

My hands swell A LOT these days. A lot more redness in them as well. There was always swelling and redness before but now it’s almost scary. Seems the worst at night, I’ll wake up to hit the loo and my hands will be huge and completely red from fingertips to wrists. Seems to go down a bit once I get them moving in the morning. If I do a lot of work with my hands though I can almost watch them swell. I’m sure pregnancy has something to do with this. We shall see how much it subsides after. My feet are also starting to swell. It feels like they are flattening as well. Which is an interesting feeling seeming as how I already have fallen arches. Needless to say this makes my knees angry. I’m sure the extra 25 lbs I’m carrying around is also a major cause. My hips/pelvis/lower back get extremely painful, as does the areas where the round ligaments in my low abdomen and such are. When I walk I have to make sure I take a lot of sit breaks. My knees, calves and feet get very painful very fast. They also cramp up in no time. They do that when I stretch too. And the foot cramps! Oh my Gods! I’ve never felt anything like that in my life! The t-zone in my upper back is being overshadowed most of the time by everything else. There are at least three days out of the week though where it flares up really bad. My entire back aches. My right side is particularly painful because baby has decided that is the most comfortable spot. There’s ALL this room on the left but apparently it’s not good enough, hehe!

Speaking of the baby everything is going very well. My womb was measuring large but that seems to have settled itself. Baby seems to be happily settled into it’s almost birth position. Head down low, back curving along my right side, butt right underneath my right breast and DIGGING into my spine (thanks baby!), arms and legs all aflutter on the left side. We have argument’s now, the baby and I. It feels like the baby is trying to escape out of my spine so I give a gentle push to the left which helps immensely. Baby will shove back. Or move over and then five minutes later go back to the usual spot and haul off and kick my right side and spine. It’s no surprise I suppose, given the child’s parents! I am 34 weeks and three days (approx.), birth is looming. Part of me dreads it, partly because I HATE hospitals with an passion and because once the baby is born then I have to share. Another part wants the baby out so I can meet the child and find out if it’s a girl or a boy so I can stop calling it random names, but also because my body is getting very unhappy about all this. I worry I won’t be able to breast feed. There is a very god chance I will have to go back on my heavy meds right away just so I can care for the baby. I’m hoping I can take some lower level ones that will allow me to keep breastfeeding.

That’s all for now, I think it is time for a nap.

OH! I had a massage appointment last week, it was fantastic. I have another this week!

Pain: 8

Meds:

Mood: 

March 10th, 2012

*sighs*

This is why my house gets so messy. Cleaned yesterday. Not a crazy cleaning binge or anything but made it somewhat presentable. Made apple crisp then my back crapped out on me. Woke up this morning with claws for hands. As the day has gone along pain levels are ramping up. Everything from the shoulder blades up. If I do too much with my hands for any length of time it feels like someone is ripping out the tendons in my wrists. Can’t lift my arms above my head. Feeling nauseated. Overall it’s really rough going today. Was going to participate in a Garage Sale today to get some advertising done, promote the cake smash with Gemini Visuals, and sell some goodies. It’s not happening. I can barely move for any length of time. I am not pleased.

 

Meds/Pain Management: 1 ES Tylenol, neck stretches, taking it easy, 1 Wellbutrin

Supplements: 1 Vit D, 1 Folic Acid

Pain Level: 8.5 – 9

Mood: 6