Interstitial Cystitis Flare – 08/07/2019

Content warnings: blood, intimate details of my nether regions, urine

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So.

Things have been epically stressful in my life since June 24th.

I thought I was taking enough care with what I was eating and drinking. After all, it’s been YEARS LITERALLY since my Interstitial Cystitis was any sort of issue. It’s been so long I had to look up relief methods.

The flare isn’t entirely unexpected, but it still caught me a bit off guard. Symptoms include high pain levels (ache/burn) in my nether regions and lower abdomen, bladder spasms, urgency, light bleeding.

I have medicating with CBD/THC, acetaminophen, naproxen, and cyclobenzaprine. Drinking lots of water. Avoiding all trigger foods.

Check In – March 3, 2019

I am feeling very unwell today. The barometric pressure has been doing this rollercoaster thing for the majority of the winter. It’s been really rough. Particularly with having to recover from surgery.

The symptoms I’m having right now are the ones that really get to me. I’m used to pain and stiffness and having to gently push through it. These symptoms I can’t really alleviate the I can with pain and stiffness.

The list includes: dizzy, exhaustion, lethargy, light headed, unsteady on my feet, upright is hard. The longer I remain upright, the harder it is to do so. Shakes, swelling, feeling like I’m going to faint. Ugh.

Symptom Tracker – “Asthma”

Tracking symptoms as I think I’ve noticed a correlation between my cough, night sweats, and exhaustion.

Day before yesterday chest tightness started. Took my puffer yesterday in the morning. Night sweats last night. Woke up wheezy and coughing this morning. Woke up exhausted last two days. Been working a lot more the last 2 weeks.

Must track longer to see what’s what. Maybe a Connective Tissue Disease related? I can’t see this being related to Fibromyalgia or Psoriatic Arthritis.

Winter Bones

I made it nine days this time without Naproxen. Only took it for three days before my ankle calmed down, which was nice.

What wasn’t nice was the sudden plummeting temperatures. So the nine days has ended. It will be a couple more days I think before these pain levels drop.

I think I will take it daily again but take special care around my period in case I need to take the Cambria for the now regular migraine.

My doctor’s office has once again dropped the ball and have not called about the appointment I need with a neurologist.

Sigh.

High pain levels really do a number on my mental health.

Fast Broken

Well 7 days had been my original goal for my Naproxen/Rabeprazole fast and I made it. I’m happy about that. Not happy about my right ankle and foot flaring this badly, this suddenly.

3-5 days and hopefully foot will stop hurting and I can stop again.

Flare Tracker – 30•07•2018

Chronic pain info dump time!

Those red lines? Those are the paths my pain is following right now. It radiates out as well.

That dot? It feels like I’ve been impaled with a spear at that spot, and the spear is still there.

They tell me this is a fun combination of spinal compression, shitty connective tissue, and the nerve centre in my upper back being all fucked up. The “dot” is where a bunch of scar tissue hangs out from an work accident from years ago.

Meds so far today: Tylenol Arthritis, Naproxen, Cyclobenzaprine, CBD’s.

I have to work a full shift today too. Blarg.

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