Annual Rheumatologist Appointment 2018

Saw my Rheumatologist today[Wednesday, September 12th 2018], here is the yearly update:

All labs are good.

My arthritis is very well controlled, can’t do much about Angry Ankle and Pissy Foot, it’s just life with arthritis. Meds remain unchanged.

Which are:

Hydroxychloroquine(dosage based on wright), Naproxen 500mg × 2 daily, Acetaminophen as needed, Cyclobenzaprine 10mg x 1 daily, Rabeprazole 10mg x 1 daily, Cannabis as needed.

The extra aches and pains can be attributed to my Chronic Pain Disorder. My Rheumatologist told me today she really doesn’t like the name Fibromyalgia because it implies muscle pain, when it is really a pain disorder. Things hurt. There doesn’t need to be anything specific even there for it to hurt.

Undifferentiated Connective Tissue Disease is still very mild. It’s not even something we talk about anymore.

She had not seen my physical or mental assessments from WorkBC. She agreed that, physically, I am capable of gentle part time work.

Was very insistent about me starting an exercise program. Just walking isn’t enough. Maintaining mobility as well as keeping muscle tone is important.

My arthritis symptoms are overall BETTER because I’m working part time.

Eyebrows are developing annual mild psoriasis. A new spot, about the size of a loonie, has appeared on my left ankle. So now my ankles match. It’s barely noticable right now but it was documented.

So overall my I’m holding up rather well in the physical department.

Advertisements

Flare Tracker – 30•07•2018

Chronic pain info dump time!

Those red lines? Those are the paths my pain is following right now. It radiates out as well.

That dot? It feels like I’ve been impaled with a spear at that spot, and the spear is still there.

They tell me this is a fun combination of spinal compression, shitty connective tissue, and the nerve centre in my upper back being all fucked up. The “dot” is where a bunch of scar tissue hangs out from an work accident from years ago.

Meds so far today: Tylenol Arthritis, Naproxen, Cyclobenzaprine, CBD’s.

I have to work a full shift today too. Blarg.

#chronicillness #chronicpain #mylife #snapshot #nervepain #musclepain #jointpain #psoriaticarthritis #arthritis #undifferentiatedconnectivetissuedisease #fibromyalgia #oldwounds #scartissueisabitch #flaring

Left Wrist Issues

I’ve posted before about the ganglion cyst in my left wrist. Finally talked to the doctor about it. I need to go for x-rays to check for joint damage from arthritis. I am waiting on the call for my referral to a specialist to have to cyst removed.

It hurts. A lot. I’m pretty sure it presses on a nerve as when it gets really bad my whole hand, elbow, and shoulder hurt along with it. For the first time in a long time I am concerned about my health. I need to go back to work.

Here’s to hoping the x-ray turns out fine. I’ve been advised to wear a brace with a hard bottom until further notice.

Connective Tissue Disease Things

After my last appointment with my rheumy I’ve learnt how to identify all three types of pain I have now. Arthritis, Fibromyalgia, Connective Tissue. Lately it’s been the ligaments, connective tissues, skin, and such that are painful. It’s particularly bad today. A 7-8 on the scale. I’ve managed to get myself and the kids dressed and fed, gone to the clinic and pharmacy. Rather proud of myself for that. Still have some grocery shopping to do and getting the boy child his haircut for impending kindergarten.

I’ve taken all the pain meds I can. I’m thinking I might need to take a dose of cyclobenzaprine. This would involve weaning immediately though and I’m undecided if I’m up for that. Fuck it hurts though.