Did not eat gluten all day, I was tired from work but not in too much pain. Had a burger and fries for dinner. The bun was a regular white hamburger bun, the fries have some sort of coating. Within two hours I developed moderate to severe joint pain, itchy skin, some sneezing.
So I shared this meme today on my Facebook page. An acquaintance asked why do it then, as in why hate my body. I answered that I can’t help it sometimes. I’ve waxed all philosophical about it and decided I needed to write an actual blog post about it. As the title alludes to, there is a lot of fear and loathing involved in my relationship with my body. It’s never been an overly healthy thing. That’s the toss up for hopping out of the womb three months early and surviving, I guess. I caught pneumonia for the first time at one week old. For all the sickness I had as a child, none of it was a disability. My body generally worked, my immune system was just crappy. I think I was seven or eight the first time my knees started to ache. Younger for the first angry colon/bladder incidents. It still wasn’t until I was thirteen or fourteen where things really started to fall apart. I remember trying out for track and field at my new elementary school, having just moved to Surrey. As I sprinted across the field, fully expecting my legs to piston as always regardless of pain, the first real fear moment struck. It didn’t hurt a lot, my knee just refused to take my weight, and into the gravel I went. It would take a few years of debilitating knee pain for the loathing to start. When your body hurts every day, for no particular reason, you eventually start feeling pissy with it. This acquaintance, like a lot of people who don’t live with chronic pain, says I always have a choice in how I view my body. In reality, I really don’t. Chronic illness and pain do a number on the brain chemistry. So while sometimes I can pull myself out of the more, a lot of the time I can’t.
I’ve been feeling awful, as my lack of posts usually indicates. I’m still feeling awful but answering a concerned email from a dear friend reminded me how therapeutic writing is. So I’m pretty much forcing myself to write this.
Spring is here, officially and otherwise, which means all sorts of pain for me. The fluctuating barometer and temperature means very stiff and painful joints. The pollen levels are also epic, ’tis the season of allergy meds and ventolin. I love this season but my body does not. Hands, forearms, elbows, shoulders, spine, hips, and right foot are all bad. Fibro is still flaring it’s ugly head. The stress is high.
Anxiety is running hot and hard, and in none of the good ways that can be thought up. Went from twenty to fourty mg’s of Paxil. Been smoking a lot of cigarettes which really does not help anything but old habits die hard when not well. Taking that one moment at a time right now. I’ve also been gorging on junkfood but not doing so well in the proper food department. Not drinking nearly enough water either. Note to self and all. I want to go mostly gluten free again and more vegetarian fare. Will be working on this.
I am bone tired. I want to go to the beach. I want to go camping.
Signing off for now.
Arthritis Pain: 5
Fibromyalgia Pain: 7-8
My body is angry. My brain is very tired. I have come down with the virus/plague/whatever is going around here. My spouse with his iron clad immune system is still fighting it after four weeks. I’m going to be sick until freaking Summer. I just want to sleep but I have to go to work. I was considering a new line of work but both my Rheumatologist and Psychiatrist both recommend me staying in this current job. It supplies “free” exercise and animal therapy as well as keeping me active. I may need to take a day off later this week. Arthritis isn’t too bad these days, my FM is kicking my ass though. VERY achy and stiff, a lot of brain fog. Anxiety is definitely better than it was.
Fibro pain: 9
Arthritis Pain: 6
PROFANITY UNDER THE CUT!
Fibro Pain: 8-9
Arthritis Pain: 5-6
Joints were only mildly cranky, mostly due to work. Fibro pain was bad today. A few light headed moments. Had a late walk and missed my bus, watched it drive by as I was painfully trying to book it up the stairs. I just about burst into tears. When I got up the last flight my wonderful hubby and the child were waiting for me to drive me home. SO happy to see them. My mid-spine is quite painful today. I’ve never been sure if that pain is FM or PA related. I discovered this evening that I have lost the ability to use a mortar and pestle. I know I can pick up an electric grinder for like $10 but it’s not about the ease of which I can replace using my hands; It’s about the fact it’s one more thing I’ve lost the ability to do with my hands. I am displeased but too tired and worn out to really get bent out of shape about it. I’m VERY slowly putting together a batch of banana-carrot-zucchini muffins, and by slowly I mean I started an hour ago. *silly face* They will be good when they are finally done. Hanging out with my son is great. I don’t get to see him nearly enough right now. Last week I did routine blood tests ordered by my rheumatologist. I think they are just to make sure all my organs are happy since I am generally on medication at all times. I’m supposed to get them done every six months but I haven’t gotten them done in about a year. My GP’s office called today to come in and talk about it, so I go do that tomorrow. I don’t think there is actually anything to worry about. My rheumatologist put me back on Plaquenil after I stopped it on the advice of my GP about 9 months ago. Said in my case it is more stressful on my body and worse for conception/pregnancy to be off than on. There have been rare cases of children born with some hearing loss. I’m back on it though and very happy about it. A few more weeks and I’ll start to feel some real difference in pain levels. New studies have also pointed to anti-inflammatories causing issues with egg implantation, rheumatoloist said it’s not anything to worry about with folks who get pregnant easily but since I do have issues with that we have taken off of any anti-inflammatory drugs.
I think that’s all the new info.
I’m too tired to write out all the things I need to but wanted to check in. I’ve waited far too long to take my second dose of painkillers and my brain is mush. I know better than to push back drug times just because I’m feeling okay. Today was a rough day mentally. Physically I’m mostly exhausted. Except for the last hour where the pulse of pain throbbing along my nerves has steadily increased. I’ve realized I’m lumping all my pain together again so in the future I will be changing the format of my posts to clarify things a bit. The child needs to go to bed too, it’s actually past his bed time. I’m too sore and tired to move.
Fuck you Fibromyalgia. And fuck you shitty economy that forces me to work. And fuck you arthritis while I’m at it.
A lot of changes are coming. Hopefully it will all work out and I will feel a bit better and will have more time to write and such.
Much love. 💜🙏🏻