May 20, 2015

Sometimes the pain and exhaustion feels like a suffocating wave. I held it together for the day while I was out. My right side has been causing more pain then the left. Still hurts on the left but it is rarely debilitating. I knew after the first block or so of walking that it was going to be really painful later on. I did my best to take it easy. As soon as I lay down on my bed when I got home it started in my hip, then the ankle, now the knee and a twinge coming on in the shoulder. The pain has a life of it’s own when it gets this bad. It has a pulse. A personality. You find yourself bargaining with it. I’m scared because now that I’m finished my arthritis meds everything is going to get worse and worse. Until I get pregnant anyways, and that’s if I go into remission this time. We need to hurry up and move and get the tenant in so more cash starts flowing so I can stop working.

May 16, 2015 – Barometric Theory

Almost every person I have talked to that has a chronic and/or autoimmune disorder share the experience of their condition changing with the weather. A lot of this has to do with barometric pressure. I even started taking solar flares into account. I have tried to track pressures and my condition before and just couldn’t keep up with it. I’m going to note it when I do remember but I’m not going to stress about it. 

All this week the weather has been fluctuating rather drastically. A good ten degree difference from day to day. A five to ten degree difference just over night. There is possibility of rain and thunderstorms as the warm and cold intermingle.

My joints feel like they are filled with fine sand or ground glass. Sometimes it feels like what I imagine slow moving chainsaws would. The muscle/nerve pain associated with my Fibromyalgia is difficult to predict. Well all the symptoms really. Recurrent low level nausea multiple times a day right now. 

Current weather report…

Saturday, May 16, 2015, 18:45 PDT

  • Feels Like: 17
  • Wind: SE 6 km/h
  • Sunrise: 5:28
  • Sunset: 20:50
  • Humidity: 66%
  • Pressure: 101.5 kPa

Thursday, May 14 2015

My joints have been less painful which is nice but the drastic temperature changes from one day to the next are really throwing me off. I am boarding two dogs at my home right now so less walking which is also good. Had the chance for some alone time in nature before I came home from work. Now I just wish I had time for a nap.

Friday, May 8th 2015

Today was beautiful but the sudden 21C heat totally wiped me out. Having Fibromyalgia and arthritis is a catch 22. The cold weather is bad for my joints but pretty good for my FM. The warmer weather is the opposite. Recent medication changes are as follows:

  • Lyrica – stopped
  • Cyclobenzaprine – one tablet at bed time
  • Paxil – two tablets at bed time
  • Hydroxychloroquine(Plaquenil) – two tablets at bedtime three days a week, one tablet at bed time the rest of the week
  • Naproxen(Aleve) – 500mg/twice a day
  • Tylenol 1’s (acetemetophen, codeine and caffeine) – one to two tablets daily

Once I run through my Plaquenil I won’t be refilling it. We have REALLY lost our minds and are going to try for a second child. Plaquenil has a two to three month half-life. Everything else is a week or less. That being said my arthritis is flaring quite badly as well as my newly diagnosed TMD(TMJ). I can’t stop working yet though, we need it. There is a lot of stress going on that I will jabber on about in a different post. Today was a lower pain day then I’ve had for a good two weeks. Thankful for small blessings. 

Much love,

Angel

Interstitial Cystitis 

Written the night of April 15th, 2015

I’ve been experimenting with coffee again…well it’s not full on coffee, it’s instant coffee and chicory. Tasty stuff! I’m not sure if it’s the coffee, the candy or possibly the dye in my Paxil(they look like pretty pink pillows) but something has triggered my Interstitial Cystitis. It’s been, literally, years since it has bothered me to this degree. I’ll be changing my diet accordingly and hope I don’t have to see a urologist again.

Mini Post -BLARG!

Starting to feel a little sketchy…day four(or is it five?)…without Paxil because my new doctor will not refill it over the fax like my previous one did. I understand with Lyrica(which I’m happy to report I am managing relatively well without) but this is a psych med. Yes let’s deny the patient their brain medication, that’s a great idea. I REALLY hope I can get into the walk in clinic today.